Tuesday, February 11, 2014

Overdue Update

Wow long time no post. I think that I have started the last several posts in that same exact way but life has been insane and I think that may even be an understatement. I think about posting often. I come up with words to write here during the day and then I can not find the time to put them down. I miss coming to this place. I miss sharing my beautiful little girl with the world. I miss the community. Buuutttt....... enough of that already.

Last time I posted, I think I left you with a bit of vacation and also of the begining of a nursing issue with the school.

The word "school" pretty much sums up where I have been physically and emotionally since that day.

I am just 2 short weeks from starting the application process to get into nursing school. I still have a 4.0 GPA and was accepted into the honor society. I still love every minute of it. I am currently taking chemistry and have decided that they could very reasonably rename this class " Math on Crack 101". With that being said, I love math and science so I am having so much fun learning about the composition of all things. It really is pretty dang amazing and yes I already know I am a nerd.

However, my college adventure has been the least of my school worries.

About a month before Makenzie started school this year I found out that her school no longer had a nurse. I tried very hard before her first day back to try and get some answers and come up any kind of solution. However, on her first day of 1st grade there was no nurse on the property so Makenzie and I started first grade together. I sat in the back of the class and tried to work on my own homework while leaving the education to the professionals. The problem...... there was no education happening. I had suspected that the school had not been giving Makenzie what she needed for a long time but suspecting it and seeing it with my own eyes was a different story. So the lack of a nurse went from being the only real issue to becoming one of many.

It took many meetings with several district administrators, the school staff, an advocate, and legal representation from an attorney, over a period of two and a half months to finally work out the nursing issue. However, the education issues were a whole different story.

Once the nursing issues were resolved the school decided to change Makenzie's IEP in a not so good way without my consent. We ended up changing schools and things did not get any better.... in fact I am pretty sure they got worse.

New Years Eve Downtown
I have cried tears of sadness and anger. I have screamed profanities and pounded my fist into pillows while no one was watching. There were many days that I seriously contemplated taking down Makenzie's therapy swing and replacing it with a punching bag.

I can not understand why the school system refuses to see my little girl who is adding, subtracting, and recognizing sight words, as a child who is intelligent and able to learn. Makenize deserves more and as a matter of fact she has the right to have more.

Talker and switch on desk.... Makenzie on the other side of the room? Hmmmmmm

I am leaving out most of the gory details because on Monday the weight of the world was lifted from my shoulders in the form of an attorney. I having been fighting this uphill battle alone for far to long. Makenzie is falling further and further behind and the moment I signed that paper I almost cried. There will be no more midnight emails trying to stay professional through the frustration. There will be no more meetings were the "team" considers my suggestions and then does whatever they want regardless. There will be no more disrespect to my daughter's rights and dignity.

I can come here in this moment because I can rest in the fact that I don't have to fight tonight because the fight is now in the hands of a professional who the district can not ignore. No more " you are just a mom and don't know what you are talking about" to worry about. I honestly do not think my heart has felt so light in a very long time. I once again have hope that Makenzie will finally be able to have what she needs and deserves.

Outside of all of the above mess, Makenzie is doing wonderful! She never ceases to amaze me and God has not stopped providing miracles.The boys are working hard in school and Mr 16 (yes you read that right) got his permit and a job. Time is flying by and my kids are growing up way too fast!

I hope to be back soon!!!

Believe.... Prayer Works!

Oh,  picture taking and editing has kinda gone on the back burner as well..... sorry for the phone pictures but I figured something was better than nothing at all!



Timothy Courtemanche said...

I am always excited to get the notification of a new post from you, they are so far behind. Though frankly, I am surprised you ever find the time to pose; all this burning the candle at both ends and in the middle!

Makenzie is a beautiful child and is lucky to have such a dedicated mom, as are all your kids. Though I am sad that you have had to resort to an attorney for her education, I am excited that one has come into your life who can lift that burden from your shoulders and allow you to breath easily.

May The Lord continue to place the right people in your lives to make things right and may He protect you and your family from all things negative. God is good, all the time!


Donna said...

I feel your anger and frustration. We too have a disabled 7 year old girl over here in the UK and finding education that challenges her and meets her needs is tough. Hope your situation will now ease with the involvement of an attorney.

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