I am not sure life has ever been this busy.
I have spent much of the last two week at appointments in different parts of town trying to get all of Makenzie's doctors switched over. It has gone really well and I have been very pleased with each new specialist we have met.
I won't bore you with all of the details because that would be novel like but I will summarize. Makenzie passed a repeat swallow study. She is still having some issues with thin liquids but has an immediate cough following each possible aspiration which is good. We saw a new ENT and rehab doctor. Nothing big at the ENT and the rehab doctor gave me a script to try baclophen (muscle relaxant) again. We also visited the pediatrician and Makenzie has gained 2 pounds and is also taller. Next week we will be visiting a new GI doctor as well.
In the last two weeks we have also been to the dentist twice, the eye doctor, a wedding, and a family reunion. I registered the kids for school and took Mr 14 to the HIGH SCHOOL to get his class schedule and ID. We also started back to school shopping with getting hair cuts and some school supplies.Today part of Makenzie's school team came over to visit and I got started on reviewing health plans for both Makenzie and Mr. 11..... who is still on blood thinners.
This week is not going to be any easier as we still have 2 more doctors appointments, an IEP meeting, meetings with two school nurses, a open house at the high school, a half day orientation for Mr 14, make up registration at the middle school, shopping for the rest of the school stuff, new clothes and shoes, and a baseball game on top of all of the regular stuff.
School starts on Monday!
I am TIRED!
However as tired as I am from all of the busyness, life is good.
I have officially registered for my first 3 classes, ordered my books and will start my first college class in two weeks. Empowering! I am also looking into joining a Cross Fit gym so that I can start building my core body strength in order to be able to continue to lift my ever growing princess.
It has been a very long time since I have spent any time focusing on ME. It is a very hard concept for me to embrace. Very hard!
Many people have told me over the years that I need to take care of myself. A few month ago I was talking to another mommy who also has a little boy with special needs. She has done so much for her son. She also has started to find time for herself and during this particular conversation she was very adamant about how important it was and how much better she felt. I listened. I came up with many excuses on why there just was not time for me, and then I marinated in her wise words.
Over the last few months I have embraced taking care of me in baby steps. I drug myself to the dentist to get a good look at what I needed to do to make my mouth healthy again. Let me tell you it was not pretty but God blessed my efforts with guiding me to a dentist who was so touched by my family's story and offered to fix my mouth FREE of charge. Then when they were done with that (ok almost done) they fixed all of my boy's mouths free of charge as well. I cried for a good long while! Thank You Valley Dental.... you have no idea what you gave to this family!
Then I also went to the eye doctor and bought myself a pair of glasses so that I could wear my contacts how they were intended instead of 24 hours a day for days on end. I am pretty sure breathable contacts do not mean..... never remove because if you do you will not be able see to take care of your kid in the middle of the night. After a good eye exam God blessed this effort with a clean bill of eye health despite the great misuse of my contacts over the last 5 years.
Then there is the school stuff. I struggled with this one because I really had no idea what I wanted to be when I grew up. I explored some different options and I gave them much thought. I filled out all of the financial aide paperwork and listed the codes for the schools which offered the programs I was considering. Over the summer God however led me in a different direction. I began to feel a very intense need to look into nursing school. I did some research online and found the perfect program. I went to talk to the administrator of this nursing program and just knew it was were I was supposed to be. However, there was one small problem..... I had not put their school code down on my FASFA paper work and even after it was added it was going to take up to 10 weeks to process. I decided to go ahead and set up a payment plan to start paying for fall classes but had no idea how I was going to come up with the extra money every month to pay for it until my grant/aide came through. Again God knew better. Yesterday I checked and I have been awarded a full Pell grant and will not have to worry about payments or the cost of books!
Let me tell ya, it sure does feel good to spend a bit of time paying attention to what I not only need but also want I in life. I am excited. I can't wait to see what the next era of my life will hold. I know that this is not going to be all rainbows and unicorns but I trust that God has lead me here and that is all I need to be confident that I really can do it.
Life is busy and I am tired but for today the craziness is just fine by me!
Believe.... Prayer Works!