Wednesday, May 30, 2012

Memorial Fun

We had a wonderful Memorial Day.

 

We were invited by a friend to go to the horse races. I have never done such a thing so I figured it would be a fun new experience. I am not the betting type but it was still fun to hang out, watch the horses, eat chili cheese fries, and be with friends.



We put Makenzie's new canopy into real use (other then on our back deck) and it worked WONDERFULLY!!! I am pretty sure this is one of the best purchases I have ever made. I did not have to fight to keep a hat or sunglasses on her and most of her body was shaded all day! If you missed the link I posted the other day here it is again...... Emmas Exquisite Canopies and Wheelchair Accessories.   




After the races we headed over to a friends house for a bit of swimming a some good ole summer grilling! We almost skipped the pool because Mr 11 could not get into the pool because of his PICC line. However I realized something about my life about 30 seconds before I got ready to head home. The way my brain constantly thinks up ways to modify activities for Makenzie is more of a lifestyle and a frame of thought which can be and is applied to so much more in my life. Makenzie has taught me how to live, how to make so many things in life just work no matter what stands in my way. It is something that I constantly live day in and day out. 


So the ability to adapt to any situation came in handy and instead of leaving we headed to Wal Mart for this.........





I watched as my sons face brightened and a smile replaced his sad face over the idea that he could not have fun in the pool with the rest of the kids. 


Makenzie LOVED the water as usual and Mr 13 was up to his acrobatic antics as usual! 





Morgan loved the water as well. In fact he loved it a bit to much! The fearlessness of little boys scares me. Under a watchful eye we let him loose in the pool area and he made a running b line straight to the edge and tried to get in. It is time for some swim lessons!








I am off to the races again for one last week of school before summer officially begins!!! 


Believe.... Prayer Works!


Saturday, May 26, 2012

Random-ness

I can't really say that my week slowed down any but today I took the day to rest (sort of). Honestly when I sit I fell worse then when I have a whole day of running around but I am hoping that a little rest will pay off in the long run.

I am feeling a bit too tired to form a complete sentence at the moment but I thought I would post some pictures of  the last few days instead.


 
Makenzie did great in therapy this week despite having a small cold. She very much enjoyed hanging out on the ball.



She is tolerating weight into her hands, arms, and shoulders much more these days which allows for some great success in all fours.





A couple of weeks ago I ordered a canopy for Makenzie's wheel chair. A friend of mine posted a picture of one she had bought for her daughter along with a link and I am pretty sure I had clicked on the link, picked out a fabric, and had a canopy ordered and on its way in about 15 minutes flat! Makenzie hates the sun in her face and she very well may hate hats and sunglasses just as much so this is PERFECT for her!





You can find this amazing canopy here.



This afternoon we had some friends over and after running around outside the kids were hot. So for the first time this year we played in the sprinklers. It was VERY windy so Makenzie decided she just wanted to watch but I think she was the only one who was not freezing in the end! Smart girl!!!!



and what afternoon wouldn't be complete without a two year stained in Spaghetti O's!!!!



A busy but wonderful week!!!

Believe... Prayer Works!


Tuesday, May 22, 2012

Hospital Stay

This week has kicked my butt!

A week ago at this hour we were being transferred from the ER to a room on the floor after Mr 11 came home from school with severe stomach pain.

The CT scan showed another abscess surrounded by a ton of inflammation.  (if you missed our original bout with a ruptured appendix you can read about it here, here,or here.)

 

Needless to say the little couch bed was not big enough for Makenzie and I. The rocking chair in the room did not recline so about 3am I found myself sleeping on a blanket with a pillow under my head and another under my hip on the concrete floor.


The abscess was/is small so they decided to place a PICC line for a 21 day course of antibiotics and after another 2 nights on an air mattress I chase all over downtown to find we were released on Friday afternoon just in time for speech therapy.

 

Saturday morning with got up at 6am to head out to Mr 13's hockey tournament. Mr 11 had spiked a fever and developed a rash from his shoulder to his elbow. The fever never reached a degree high enough to call the doctor but I was happy that the boys didn't have a great run  on the rink and fell out of the tournament by 3pm. We made it home by 4:30pm.

 Sunday morning we were back up and at hockey practice by 10am. I spent the rest of the day doing NOTHING! By the evening my house looked like a tornado came through it but could have cared less in that moment.

Monday morning the school nurse looked at Mr 11's rash and thought maybe it was a drug reaction so we headed back downtown with Morgan (my friend's 2 year old)  in tow to the Infectious disease doctor to find out it was not a reaction but an allergy to latex which was in the bandage covering his line. Since we were already there we did a dressing change and blood draw while Morgan protested sitting in the stroller by throwing french fries on the floor.

That afternoon I laid down on the couch with Makenzie at 4pm and exhaustion get the best of us as we drifted off into a deep sleep until 6:30pm.


Today after I got all four kids off to school I had an appointment for an estimate on our bathroom remodel. I babysat Morgan and his sister, Emily while my friend had a meeting at work and worked on a project for Makenzie's school. When it was time to get Makenzie I loaded Morgan and Emily into the car and halfway to school Emily took the liberty of throwing a leftover cup of root beer across my van. I took a deep breath and thanked God that there is not carpet in my van as I was loading Makenzie into the van through the puddle of sticky soda.

Once home I had another appointment, this time for an estimate on a platform lift and then speech therapy. My friend came to get the kids about 6pm at which point I ran and got some dinner, gave Makenzie a bath, tied two pairs of skates, fixed Makenzie dinner, loaded in the van, and headed to a hockey game. We got home about 9:30pm and all was quite by ten.

I am tired. I am looking forward to a less eventful day tomorrow because I am not sure I can keep up this pace for much longer.


If you would please say a prayer for healing in Mr. 11's gut. We needed the inflammation to go down so that we can take out his appendix  once and for all. One way of another it will be coming out but the less inflammation that exists the easier the surgery will be the the less risk there is for bowel damage. 

Here's to a restful day tomorrow!!!!

Believe.... Prayer Works!

Saturday, May 12, 2012

My Gift

I am not sure I remember what I thought being a mother would be like before I had kids. What I do know is I had no idea being a parent could be so hard but so utterly wonderful all at the same time.

Life is so busy. There is one of me and four of them. Each of my children has different wants and needs but some how with God's help every day I pull it off.


Today we spent 12 hours at a hockey tournament. As I sat in the stands the day before Mothers Day with Makenzie giggling on my lap, my 13 year old son next to me, while  I screamed my head off, I couldn't help but soak up the perfect little life that my family leads.


 After Makenzie's accident not only did I grieve for what Makenzie had lost but also for all of the things I could imagine my boys would loose. I was scared that they would get made fun off for having a sister who was different. I was worried that their friends would not want to come over and if they did my kids would have to answer hard questions. For a long time I felt like I had failed them as a mother.


However as hard as the last 5 years have been I know I have not failed. I am not perfect but I am good enough.

 

We sat Golden Corral this afternoon with most of the hockey team for lunch. (I despise buffets by the way) My boys sat with the team of 10 year olds covered in sweat after playing two games. Makenzie and I sat at the table with all of the hockey moms and dads. We talked, we laughed, we ate a little lot. It was normal. It was fun. I wouldn't have wanted to be anywhere else in the world. 

I am not sure my boys ate any real food but they sure did get our moneys worth in the form of ice cream, chocolate covered fruit and cookies, cotton candy, and gummy bears. There were spills, laughter, blue tongues, and the threat of a sugar coma halfway through our third game. I caught glimpses of a sparkle in my children's eyes which I have not seen in a long time.

I have officially received my Mothers Day present!

To add icing to the cake everyone on the team is so in love with Makenzie! She is part of the action. Everyone interacts with her, melts when she smiles, and consoles her when she gets overwhelmed with the high decibel screaming.

Today an extra uniform and hat was given to Makenzie so that she could be the team mascot. I put the uniform on her and I was so dang proud. Makenzie my not be able to play hockey....(I am however trying to figure out a way for that to happen) but she still can be part of the team!


To add a cherry and whipped cream our hypathedical cake, a parent of a child from a different team owns a fun center with zip lines, huge swings, and goodness know what else, all equipped with full body harnesses invited Makenzie to come play anytime she wants! I will certainly be taking him up on that!

I am so in love with my life, my friends, my family, and my community. Five years ago, I had absolutely NOTHING to worry about!!!

 

I hope everyone has a wonderful Mother's Day! I know I will!!!!

Believe.... Prayer Works!

Friday, May 11, 2012

Hey Girl

Oh do I ever love this girl!!!

If you enjoy great pictures, head over to iheartfaces to check out their monthly photo contest!




Photo Challenge Submission



Wednesday, May 9, 2012

Pretty Princesses


Really there are no words necessary.......




Believe... Prayer Works!

Sunday, May 6, 2012

The Teenage Blessing

 I have been dually blessed in this season of my life with two teenagers.

This weekend one of my teenage blessings bought an iPod. He really loves music and has been eying a certain 30 gig i device for a long time. For the last 2 days he has been plastered in front of the computer setting up play lists and downloading music with gift cards he received and saved for this very occasion.

However unfortunately, being a teenager sometimes comes with  lack of common sense, selective hearing, and the inability to rationalize or take responsibly for ones actions. It is great let me tell ya!

This afternoon while we were all taking care of some chores around the house this said teenage blessing hooked his beloved iPod up to the speakers in his room. My other teenage blessing took huge issue with this as he wanted no part in listening to his brothers music. So in order to save the peace I asked for the music playing to be filtered through personal earphones.

I made the request once and my teenagers selective hearing kicked in full force. Five minutes later there was another eruption from the basement because the music was still being broadcast over public airwaves.

At this point I made the earphone request again this time stating a consequence entailing the confiscation of the beloved iPod if the selective hearing and lack of common sense continued. Five minutes after my second ignored request I was holding the iPod in my hand and all rationalization went out the window.

It went something like this.

"oh come on, it wasn't that loud."

"that is not the point son.... I asked you to use your earphones and you chose not to do what you where told."

"what is the point of having speakers if I can't use them."

"i didn't say you could never use them again, but for this moment I asked you to listen with your earphones."

"why do you get to listen to your music on speakers, you are so selfish and don't care about how I feel"

"i am sorry you feel that way.  I do care about your feelings however your iPod was taken away because you did not do what you where told. I am sure you are upset because you made a bad choice but this has nothing to do with how I listen to my music nor will anything you say or feel change that fact at this point."

'stop lecturing me, you never listen to my opinion anyways"

"I would love to hear your opinion. If you were me what do you think I should have done in this situation?"

(silence)

"i am sure your opinion is that I should give you back your iPod because you feel your music wasn't too loud and you should be able to listen to it on your speakers. Unfortunately I asked you 2 times to use your earphones and you chose not to do what you were told. You will not be able to use your iPod until tomorrow."

"what is the point of even having an iPod if you wont let me listen to it?"

"i never said you couldn't listen to your music. In fact I gave you access to over 3 days worth of songs and a $15.00 credit to pick out more albums. All I asked is that you use your headphones to listen to it right now and you didn't do what I asked"

"you didn't say you were going to take my iPod away. I thought you meant you were going to take away the speakers."

"you know what I said and what I meant"

"but you just said "it""

"well I took "it" away..... now you know. Maybe next time you will make a better choice.

"see I told you that you don't care how I feel."

Yeah if you have not had the pleasure of parenting a teenager.......... let me just warn you that no book could ever prepare you for this undertaking!

To add to teenage drama we had a little explosion in the kitchen when the whole bottom of Makenzie's feeding set broke out.



and

some indoor hockey competitions



All in a good days work!

Believe.... Prayer works!

PS... Makenzie is feeling a TON better!


Saturday, May 5, 2012

Just Sick

Two posts in one day..... crazy I know. If you missed my first post today with pictures and a video of Makenzie in her walker check it out here.

Last night we had some friends over. We spent the evening on the deck grilling steak, watching the boys jump on the trampoline and play in the park.  Makenzie walked some more in her walker and giggled hysterically at her brothers antics.


I fed her some Greek yogurt which she spit most of out. I wasn't over concerned because it was the first time I had tried the Greek variety and though she was just not wild about it.

 

Our company left about 8:30pm and Makenzie and I started the get ready for bed routine. About 9pm I knew something was wrong. She felt a bit warm, her eyes were glassy, her body was super loose, and she just laid completely still in my lap.

By 10pm she was finally sleeping and by 1:30am she was rudely awakened by a bout of vomiting. I cleaned her up and she was awake and restless until close to 4am. From 4am until noon today she slept hard. At 4pm we had an official diagnosis of Strep with antibiotics in hand.

 

So much has changed in the last 6 years. It dawned on me this afternoon that I no longer run straight to the Children's hospital ER when Makenzie is not feeling well. In fact I no longer even make a call most of the time to the pediatrician.

Makenzie, other then her CP is so much like any other kid and that is a huge blessing. She is healthy and has no real urgent need for any kind of specialist. When she gets sick I find myself heading 1 one mile from our house to the urgent care. I rule out the normal stuff that can be cultured and if that fails then I make the call to the pediatrician. If their office can not figure it out then we head to the ER.

It is amazing to know after six years of being on pins and needles about your child's health that there is no need on a Saturday afternoon to spend 5 hours in the ER for a diagnosis of strep throat! It is amazing to know that your child's doctors trust you enough to know that you can discern what level of care is needed when Makenzie is not feeling well. To many this may seem small but for me it is huge! My heart does not sink evey time Makenzie wakes up with a runny nose or fever because at this point it is ok. Why?.......because she is ...... Just sick.......like any of my other kids.

 

As happy as this makes me it is sad to know that our discovery of the Urgent Care office came out of the Children's Hospitals inability to make a correct diagnosis any of the times I have walked into their ER over the last year. They have done a horrible job of caring for my children and I have ended up getting correct diagnosis's at the urgent care, pediatricians office or other clinics each and every time I walked out of that ER with what seems to be their standard answer for every type of symptom....... "it is just a virus"

I realize that sometimes it is just a virus and I accept that but too many times it has been more then that and they completely missed it, once almost killing my son. Not OK and this issue brought us to the introduction of the Urgent Care which seems to but much more thorough then a full trauma center.

So Makenzie is sick but smiling. She has what is needed to feel better and is sleeping well. I guess that means I should follow suit!

Believe... Prayer Works!


Turning the Kidwalk!

Yesterday Makenzie got in her Kidwalk for the first time in a while.

We have been using the Taos Walker more lately but yesterday during therapy there was not enough time to don the orthotic so the Kidwalk it was.

Makenzie ROCKED it showing us that not only could she hold her head up without the head rest but that she understood how to place weight on the correct foot to turn!



She found Mr 14 sitting at the computer and was so proud when she made it over to see what he was doing!



I am not sure how many laps around the house and down the hallway we did but Makenzie loved every second!





Today however, Makenzie is feeling under the weather. She is a bit warm, lethargic, and was up a good part of the night just feeling yucky.

I am going to take her in for some quick cultures to rule out anything that could be medicated and hope she gets to feeling better soon so she can get back to running around the house!

Believe... Prayer Works!

Friday, May 4, 2012

My First Bus Ride and Field Trip

Yesterday we had another first around here.

Makenzie went on her very first bus ride and field trip with her class!



I debated whether or not to go on this trip because it involved a bus and missing 3 hours of therapy but I am so glad that Makenzie was able to go because she we had a blast!

The morning started a bit rough with some miscommunication about what time the bus was leaving but we made it to the school in the nick of time!

Makenzie was not so sure about the lift to get on the bus but once her wheel chair was all tied down she was all smiles. We sat in the back of the bus with Makenzie's aide and watched forty-one, five and six year olds enjoy what was for many also their first field trip. There where many reminders to turn around, sit down, and for goodness sake please keep your hands to yourself. There was much giggling, talking, and even some singing on the ride to the museum and working farm.



Once we arrived the four classes where split into two groups where we went first to do a craft and then to listen to a speaker talk about the farm and what life was like many years ago.



Makenzie had a ton of fun constructing a sheep out of cotton balls.



She was also very attentive when the tour guide talked all about the farm and how to care for the animals. The funny thing is Makenzie is not a fan of farm animals but she sure did like hearing about them.



After the classroom time we headed outside to eat lunch and then to explore the farm.

The first stop we made was to the Black Smith Shop. Inside there was a real fire and a Black Smith who showed us how they used to make nails. He pounded the point out. cut the extra off and made the head. After the nail was done he dropped it in a bucket of cold water and the kids got to learn how to make sure the nail was cool followed by touching the water and the nail.



We then  walked through a old homestead and into the farm to check out the animals. Makenzie did great. She was a bit uneasy around the mule and the sheep but she thought the chickens and turkeys where a bit more fun!



There was also a beautiful lake with some ducks, a cool windmill, and several people walking around acting the part of farm workers.







Makenzie just loved watching all of the kids, animals, and beauty the beautiful spring day had to offer!





Before we knew it our time at the farm was over and it was time to head back to school.



I had a wonderful time. It is not very often that I get to stand back and watch Makenzie interact with her peers because I am usually the one that helps her participate in these kinds of activities!

I could not be more happy with Makenzie's school and the joy they have brought to her life and mine as well!

Believe.... Prayer Works!

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