Wednesday, November 2, 2011


About a month ago Makenzie's name was finally at the top of a waiting list for a medicaid waiver in our state. This waiver offers medicaid to children based on their need instead of their parents income. It also provides services to these children that are not covered by medicaid.

It took a bit of time to get letters of necessity submitted but Makenzie's additional services are all finally coming together!

This week she had her first Music therapy session. She LOVED it! Makenzie loves music and getting to strum a guitar, play the maracas, pound on a drum, listen to a rain maker, and dance to Sugarland, is right up her alley!

(Morgan thought music therapy was pretty great too!)

She will also be receiving massage therapy once a week in our home starting next week. They have paid for a year pass to the rec center for water therapy, and hippo therapy is also covered.

The waiver also covers some respite and when I find some hours in the day and someone I trust to hang out with Makenzie we will be taking advantage of that as well.

I have also been de-cluttering our house in effort to prepare for a company to come in and help clean one a week starting tomorrow morning. This is also paid for by the waiver. This is one of the services I was most happy to see available! LOL! It makes me feel better about life because if they are offering it on a waiver that tells me that I am not the only one that struggles with the constant juggling of all of Makenzie's needs and the needs of my home at the same time. Obviously this is a need many others have!

We have also submitted a letter for help modifying our bathrooms to make one accessible for Makenzie. We will be converting two smaller bathrooms into one large bath with a walk in shower, accessible tub, vanity and toilet. The waiver will pay up to $10,000 once every 5 years to assist in home of vehicle mods. I am so excited to get this done!

I am so thankful that our early intervention worker MADE me fill out the paperwork for this waiver years ago. I was still in denial and told her Makenzie would not need something like this because she was going to be healed. Don't get me wrong..... Makenzie has been healed and I am so grateful for her continued healing but these are all things that she that she needs for her independence and the health of my back!

On a side note, tomorrow after school my whole family will be heading to a camp for kids who talk with technology. We are so excited and pray for health and safety. I feel like I am getting a cold and Makenzie was a bit more refluxy today. Last time we tried to go to this camp we ended up leaving less then 24 hours after we got there because Makenzie spiked a fever. Pray that we all stay well, that we meet some amazing people, and that everyone stays safe.

Oh and one last thing......... I got a letter from the insurance company today..............Makenzie's Power Wheel Chair has been APPROVED!!!!!!!!!!!!! God is so dang Good!

Believe..... Prayer Works!


Angela said...

So happy your waiver was approved and the insurance is paying for the power chair. Prayers for health, safety, comfort and peace for camp. And we love music therapy here too. When Eli is in the hospital after surgeries we always make sure the music therapy guy comes to see us while we are there. It's so helpful with his PTSD.

The Henrys said...

That waiver sound amazing! How long did it take you to get approved? I'm trying to decide if I want to stop one type of assistance and switch to a waiver, but I am worried about how long it will take.

PS, I love the video of Makenzie saying trick or treat! The look on her face is priceless!

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