As many of you already know feeding has been a huge issue for Makenzie since her accident. We have struggled with reflux, vomiting, failure to thrive, and just plain ole tummy pain.
I tried just about every formula with Makenzie before we put a gj tube in. She gained some good weight, still vomited a bit but overall was much happier.
In April when her GJ tube broke on a Friday morning in April 2010 we were forced to try the straight G tube again. Makenzie did well! However I had to figure out what the heck I was going to feed her. Makenzie has a delayed food allergy which was confirmed several years ago after receiving results from a blood test performed by Sage Medical Laboratory to many things. Some of the big ones are gluten, casein, lactose, beef,and corn. These are not allergies that will cause her to break out or go into shock but allergies that cause her more reflux, vomiting, and overall discomfort.
So with a list of things Makenzie couldn't have I set out to find a diet which would provide her everything she needed. It took a lot of experimenting and many failures but in the end with the help of my good friend Michelle I found a diet and schedule that worked!
Today I got confirmation that the diet I have come up with has produced perfect results on the full blood panel that was run a couple of weeks ago! Makenzie is getting EVERYTHING she needs! I am really quite proud of myself because no one thought I could do it. I guess I am not just a clueless mom after all!
So before I go on..... I want to disclose that I am not a doctor nor a dietitian. This is what works for Makenzie. It may not be right for your child but I wanted to offer a starting place for those who are thinking about a blended diet for your child. Please check with your doctor before changing any part of your child's diet.
Makenzie is on a four day rotating diet. This means she does not receive any of the same foods other then formula with in a four day period of time. The rotating diet helps ensure Makenzie's body will not form new allergies to additional foods.
The first and most important step to a successful blended diet is a good blender. The Vitamix comes highly recommended and with a letter of medical necessity can be purchased at a discount through Vitamix.
I start with water and formula. I have tried every type of multi vitamin nor any other kind of non dairy milk but Makenzie has not been able to tolerate any of them, so the formula has stayed. Milk of the cow, nut or grain variety can be substituted if a multi vitamin is used.
I then add juice. Makenzie gets blueberry, grape, prune, and cranberry pomegranate. All organic.
After this is mixed I add a 3.5 oz patty of meat free range, hormone free, that has been weighed and cooked. The meats that I rotate are, lamb, chicken, pork, and turkey. I tried salmon and mahi mahi but neither made Makenzie's stomach happy so I had to settle for two days of poultry.
I then add in a vegetable. Broccoli, cauliflower, peas, and carrots seem to work best for Makenzie. I also tried greens (spinach, mustard greens, kale, and chard) but those caused much more reflux so we stopped.
I then move onto the grains which are all gluten free. ( buckwheat, quinoa, potato flakes...yes I know it is not a grain but it is a carb....and rice) Agave, and olive oil.
Last but on least the fruit. I have promised my self at some point I will use fresh but I haven't gotten there. So baby food works for now. Makenzie gets a rotation of blueberries and pears, peaches, apples and bananas, and mango's. Beachnut brand provided the most calories along with Target brand peaches.
As soon as this lovely concoction is all mixed up I measure it up into a clean feeding bag and two 8oz bottles and we are good to go for 24 hours. In total I think it takes about 15 minutes a day to make her formula and other then the meat there is no cooking involved. Makenzie also gets about 600cc of free flow water as well at night on top of her three feeds throughout the day.
If you are interested in more specific info on the blended diet from a parent, not as professional advice, shoot me an email.
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