Tuesday, November 16, 2010

Tech Support and Giveaway Winner!

This morning I woke up to Makenzie's pump beeping. This is normal. However the bag being half full of water  still is not. The beeping on Makenzie's feeding pump has become something that I sleep through very well! Normally if the pump works the way it is supposed to there is no problem however lately it has been malfunctioning here and there not sensing there is "food in the tube. 

Makenzie gets plenty of liquid during the day to stay hydrated but she needs the extra water at night or she has a hard time going to the bathroom which sets of her reflux and the cycle goes around and around.

Today I had enough of my malfunctioning pump and I called the home health care company to have it replaced. They sent a new pump out before noon and I hooked it up to feed Makenzie lunch. This pump alarmed right off the bat. No matter what I did it told me there was no flow or no food! Ahhhhhhh, So I ended up feeding Makenzie with a syringe which went ok but not ideal.

Within the hour we had another pump delivered and so far so good!

This kind of stuff used to send me into a tail spin. Panic would set in over the potential of throwing off Makenzie's schedule. Today Makenzie's nurse and I just laughed as I pulled out different supplies to begin lunch despite our little technology issues. I love being able to laugh instead of cry about this kind of stuff!

This afternoon I had a meeting over the phone to re write Makenzie's IEP. It was the best IEP meeting I have ever had! Believe it or not Makenzie will be receiving more professional services being home schooled then she received at the public school!

We are still waiting for the PT and OT to review Makenzie's file and give their recommendation on a weekly amount of services but for now I do know that Makenzie will be receiving 2 extra sessions of speech therapy every week! WOW!!!

We talked about educational goals and how that would look for Makenzie. We talked about what Makenzie would be except from doing and how other part of the curriculum could be modified to meet her needs. Slowly but surly my princess will get a free and appropriate education! (FAPE)

Last but not least I have a winner for the Affordable Weighted Blanket Giveaway! Chosen by a random number generator, comment number 31 is the official winner! This comment was made by the author of the blog The Henry Family! Congratulations! Please send me an e-mail at makenzies(at)comcast(dot)net with your address so that I can mail your gift certificate to you!

Well tomorrow we have a busy day so I am going to head to bed!

Believe... Prayer Works!


 

2 comments:

The Henrys said...

I hope the pump continues to work well for you!

I can't believe I won! Thanks so much! I can't wait to give a weighted blanket to Gracie. I know she will love it!

I sent two emails since I found two email addresses on your blog. Let me know if you did't get the email and I will try again!

Thanks, Debbi

Lacey said...

Do you have the Joey pump? Ours has done that from time to time!

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