Tuesday, September 21, 2010

The Royal Beep!

I had a blog all typed up about school and blah, blah, blah that I was going to post until I went to another mothers site and found a video that sparked laughter and a reality about what it means to advocate for your child.

This mommy has a little boy named Austin. She is an amazing single mommy who has given her son a very loud voice. Austin had surgery on his jaw recently and is in a lot of pain. They have not been able to stay on top of the pain and Austin is not very happy. Austin's mommy posted this video today describing how she advocated for her son on this issue.

I laughed so hard. I watched it again and began to think about how true that very short video is for in many areas of life when raising a child with special needs.

I have joked so many times about turning into a crazy woman when dealing with many things that involve the care and well being of Makenzie.It is like Dr Jeckle and Mr Hyde. I have found myself in a fit when it comes to Medical care, SSI, early intervention, school issues, therapy services, Durable Medical Equipment, nursing, alternative treatments, medications, and the list goes on. It seems like playing nice in these situations gets you no where FAST! But..... Loud and demanding does. Persistent and annoying does. I have even found myself on at least one occasion yelling at the top of my lungs just like Shirley McClain in the short video above.

It really sucks. It is not something I am terribly proud of but it has gotten Makenzie what she needs. If that is what it takes to be heard then that is what it takes. Mama bear is in the house.

Fighting all the time for everything is exhausting but so worth it. Makenzie has come so far. Each and every battle was well worth it. I just wish I could be heard with out having to turn into a royal... you know what. That would be a nice change.

Maybe the tide will turn beginning tomorrow at school! Cross your fingers! I believe it could happen!

Believe... Prayer Works!


Janis said...

Heehee. Yes, it would be nice to not HAVE to do things like that. But by golly sometimes that is the ONLY way.

Related Posts with Thumbnails