Thursday, September 16, 2010

Mish Mash

I have a feeling this post is going to be all over the place so I will apologize up front..... I am sorry!

Makenzie has done a ton better the last couple of days in the tummy department. Yeah God! The beginning of the week was really rough. I was so stressed I started loosing my hair in big clumps.... just kidding. Really though it was not good.

I think the reason it was so bad is because I introduced a few new foods to her diet and took her completely off of the formula. I gave it a go for about 4 days and each day got a bit worse and she was beginning to get constipated, so I stopped. On Tuesday I put the formula back in and is was night and day! Makenzie has done the BM thing 6 times in the last 48 hours, very little reflux and no vomit. YEAH! The other thing that may be helping is that we added her prevacid back in on top of the Zantac.... who knows but I will take it!

On another feeding note.... another special needs mommy wrote a post here about whether or not she was going to choose to put a G tube in her son, Nathan. That is such a TOUGH disicion! She posted a site which has a growth chart that adjusts depending on how much movement your child has as well as how they are fed. So today I hopped onto the site and by the looks of it Makenzie is doing SO well!

According to her last weight check on the unmodified charts she is in the 5th percentile for weight, the 75 percentile for height, and her Body Mass index is at 53.88% percent which is already perfect. On the modified chart she is right at the 20th percentile mark for weight, the 50th percentile for height, and her BMI is at 50% as well. PERFECT!

I know these are just charts but it make me feel good to know  even though there are still some rough days Makenzie is right were she needs to be! Yippy!

Moving on to school and speech therapy!

Makenzie is doing so well in school. The one thing we are still struggling with is communication. Makenzie has so much to say but finding a consistent way for her to say it is the hard part. So today during speech therapy at home we spent the hour brain storming and reconfiguring Makenzie's talker to work better for her at school. I really think we came up with some good ideas that will work much better.

The other problem we are having is with switch access.  Makenzie still does not have a chair that is able to  mount her switch and talker to. I worked on this issue ALL summer.  Eight weeks ago we went in to have her evaluated for an Aspen Seat and we are STILL waiting on insurance approval. No one has heard one word about an approval nor a denial so I am hoping no news is good news! Until she gets her chair we will be trying some lower tech stuff at school.

The weekend is approaching and I am pretty sure I do not have anything planned for once! YEAH!! Please continue to pray for healing in Makenzie's gut! Pray that we get some good news on Makenzie's chair so we can move on to bigger and better things at school and shout out a thank you Jesus for the awesome growth Makenzie has made despite it all!

Believe... Prayer Works!


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