Wednesday, April 21, 2010

Seating, Feeding, and Throat Culturing!

Another day of blessings! Another day of love and community! Another day to remember how many people are standing behind this family and princess Makenzie!

Today started with 2 really great hours of therapy. Makenzie was so loose and looks great!

I took Makenzie to school and as soon as I left the preschool I got a call from the middle school asking me to pick up my son because he wasn't feeling well. I picked him up and called the doctor. They thought he should be seen as his symptoms sounded a bit like strep throat.

SO it was back to the preschool to pick up Makenzie and off to the doctor's office we went. I just love the people at this office. I have been taking my kids there for 12 years! They started caring for each of my children when they were each hours old. During the last 3 years they have bent over backwards to care for my family. They talked to me for hours when Makenzie was in the hospital on their personal cell phones. They have no problem picking up the phone for any questions or concerns I have at any hour of the day or night. They fit us into the schedule no matter how busy they are. They fill out any paperwork I need for any of my kids with in hours of the request. They ALL are AMAZING! Priceless! Thank you Pediatric Pathways!

Then it was home for a snack and a meeting with our seating specialist. While we where in Costa Rica Makenzie was able to sit in her friend Gracie's chair and she LOVED it! We have been on the hunt for a new chair for a while and I think we may have found a winner.

TD came and looked at the info I had printed out on the chair and measured Makenzie to see what size would suit her best. We talked for a bit and decided that we would order this chair for a 30 day trial and then decide if it would work for Makenzie.

Needless to say we should have the chair in about 10 days! Once again AMAZING! This company has also bent over backwards to help Makenzie. We have NEVER gone without the equipment that Makenzie needs!

We also started the process to make an appointment with a seating clinic that works with Aspen seating to get Makenzie a wheelchair that will be fitted specially to Makenzie and will offer her the most optimal support. This is one of the best seating clinics in the nation and I feel so blessed to have them in my own back yard! We are so close to getting Makenzie the seating system that will really fit ALL ....ok maybe not all.... I am not sure that is entirely possible....of Makenzie's needs when it comes to support and positioning! YEAH!!! So excited! So Blessed!

We were not done yet! Makenzie's feeding therapist showed up at dinner time with KFC for the whole family! WOW!!! We ALL sat down and ate dinner together! Makenzie did REALLY well and ate a little bit of everything! She is closing her lips SO well! We talked for a long time about many things but one of the big things was the prospect of trying vital stem with Makenzie. This is a technique that Makenzie's feeding therapist is trained in and could help Makenzie with swallowing, sucking, and stamina just to name a few of the benefits.

It was a great time and again for the 100th time or so today I was reminded how blessed we are! Today was a great, great, great, great, great, great, day!

I once again thank you all for EVERYTHING!

Believe... Prayer Works!!!!

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