Tuesday, April 27, 2010

Makenzie Rocked It Today!

Uneventful is good every once in awhile!

This morning while doing therapy we where hanging out on YouTube....for Makenzie of course... and maybe for a good laugh as well. YouTube is a really good tool we have found to keep Makenzie interested on her belly.

This video has been out for awhile but it get funnier every time I see it.... If you want a good laugh click on the link below....

Unicorn After Wisdom Teeth

Yeah I know that has nothing to do with Makenzie, my boys, or me for that matter but we had such a good laugh I had to share it!

So that led to more YouTube surfing after the therapists had gone. Makenzie loves the random videos. Her favorite are of people falling or laughing. We watched some pretty funny stuff including, Charlie bit my finger - again ... way funny, David after the Dentist and Kid Saying Fire Truck....I love how cute kids can be when they pronounce things so wrong, if you can't imagine what the child could be saying instead of fire truck and you have children around maybe save this link for another time.

So what can I say... it is cheap entertainment! LOL!

Makenzie has been eating really well again. So well that I had to give her medicine to herl her go to the bathroom. Good Job Kenzie.

The eating issue is going to be the end of me. She does do well and then she wants nothing to do with it, She can eat. Her oral motor skills have gotten so much better. She is closing her mouth and lips wonderfully. She is keeping her tongue in her mouth most of the time and she now shows a huge interest in food. At this point I believe when she is not interested in eating some of it is a behavior issue. Eating is fun for a little bit and then it becomes work and who wants to work when they are 4 years old?

Some other stuff that could be causing the disinterest is the lack of sensation in regards to feeling full or hungry. Makenzie has now been tube feed for 3 years and 2 of them have been J tube which bypasses her stomach. From what common since tells me being fed that way would take away the ability to feel this.

A while back we worked with a GI doctor in LA who gave us some good ideas on how to help Makenzie get more food back into her stomach and help her learn the full and hungry sensations again. I have some great idea to work with unfortunately this Doctor has since passed away and so the quest begins again for another GI doc that specializes in tube weaning!

The other option is to take Makenzie to a very successful intensive feeding clinic. Or course this would once again be in another sate for a prolonged period of time. So with that said we are going to work VERY hard this year on eating and next summer if need be I will arrange a trip with ALL of my kids to this clinic.

I know she can do this all of the time.... not just in spurts. Please pray for continued success! She gets better at eating everyday now we just need her to eat enough to get that tube out!!! Pray!

After school Makenzie had speech therapy. To sum it up, as her therapist was leaving she looked at me and said..."Makenzie ROCKED it today!"

This speech therapy session was amazing! Makenzie is communicating in ways I had no idea she could. She is asking for help, switching screens to tell us what she wants, stringing words together, and she even got impatient with us jabber mouths and told us "Play" when we didn't notice that she had picked a number on her game and wanted her therapist to make it go! AMAZING!

"For I know the plans I have for you," declares the LORD, "plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart." (Jeremiah 29:11-13, NIV)

God has BIG plans for Makenzie! Keep Praying!

Believe... Prayer Works!

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