Friday, January 30, 2009

I don't like tape!

I can't believe it is Friday again already!!! Most people laugh at me when I tell them that my Friday is like most of your Monday's. Friday Makenzie has some therapy but no school. Then the rest of the weekend there is no school or therapy for anyone! It is all of the kids, house work, and therapy, all weekend, no help, solo, all by myself!!!! Don't get me wrong, we have fun, go to church, play games, visit family and friends, but it is not the relaxing weekend that most of you look forward too!

Makenzie did GREAT in therapy today!!! Her trunk is getting SO much stronger! She is also getting more of her protection responses back!!! She was working on the ball and her therapist was rocking her back and forth trying to make her tip over. Makenzie was making it very hard. When she would fall she was coming back up very fast and all the way to the middle. Then her PT would ask for a kiss and Makenzie would lean forward and get kisses and then sit back up! She still needs support at the hips with sitting but that is so much better then her needing support with her whole trunk just a few short months ago!!! Slow and steady!!!!

At the end of therapy Makenzie's therapist and I were talking and Makenzie was laying on the floor. Earlier her OT had taped her left arm to help with wrist exstention. I looked down at Kenzie and she had taken her right hand and had grabbed a piece of the tape. "Makenzie, are you going to take the tape off?" I asked. She looked at me and smiled and proceeded to rip the tape all of the way off of her arm and hand, fingers and thumb!!!!!!!!! Her therapist and I sat there and watched in awe and then began to laugh so hard we both where crying!!!! Then Makenzie started to scream!!! I am sure it didn't feel too great!!!! But she did it!!!!! I am so proud of her!!! Thank You Jesus!!!

Please keep us in your prayers! Pray for Makenzie! Pray for healing and strength!!! Hope everyone has a RELAXING weekend!!! Thanks for all of the prayers!!! God Bless Pam!

Tuesday, January 27, 2009

ENT

Makenzie's cold seems to be going away! She is still a bit congested but other then that she is doing great!

She had a appointment with a ENT this afternoon. They gave me this whole packet of paperwork to fill out. I did most of it but of course there are those things I don't know because Makenzie can't tell me how she feels.

The nurse came in and started asking me all of the same questions that were on the sheet. Then she started to ask Makenzie if her nose or face hurt...... Did you read the paperwork?!!!! AHHHH I told her that Makenzie couldn't talk because of her brain injury. She looked at me and smile while nodding her head. Then she asked if she held her ears ever in pain. No once again..... brain injured!!! I could tell how frustrated the nurse was getting. no great answers when the patient can't tell you anything! Welcome to my world!!!!

Then the doctor came in and started asking me the same questions over again!!! Oh my Oh my!!!!!! She asked me if Kenzie was ok with Doctors... the answer....NO, no she is not! You can just see the look on the doctors face. So confused!!! How is it that she can't talk, can't hold her ears, has this brain injury that I just don't understand at all. Then the mom says she doesn't like doctors. How can that be... no words nessasary... a look on ones face says enough!

They proceed to look in her ears. With that there are tears, screams, breath holding and a near puke. The doctor doesn't see much. Makenzie's tonsils are a bit big but nothing to worry about. So why wont the buggers go away? The doctor recommends a CT scan of her sinus's. OK i guess I will go for that.

Next, an attempt at a hearing screen. Ha, yeah right!!!! More tears, screams, breath holding, and this time puke. By now I guess you probably have figured out that Makenzie doesn't like having anything in her ears!!!!!

I get Kenzie calmed down. we go back in the other room to finish her appointment. Just me and her. Just fine. No tears, Until that is the doctor walked back in. Oh my.... tears, screaming, breath holding. She didn't even step near her!!!!

We talked over her for about 25 seconds until I finally looked at the doctor and said... "see, I told you .... she doesn't like doctors". That was the end of that! The second we walked out the door Makenzie was all smiles as if to say "Haha mom I WIN!!!!" Hmmmmmmm

That is the daily frustration I live because people do not understand my daughter. She looks great! She still has a brain injury and most....even doctors DON"T get it!!!!

I am so proud of her for not liking doctors! Even tough it makes the simplest hearing test impossible it is so great! Great to see how smart my daughter is and continues to be! She understands so much and knows how to get her way!!! SPOILED!!! I wouldn't have it any other way!!!!!

Keep praying!!! Pray for healing and strength!!!! Thank You and God Bless!!!!

Saturday, January 24, 2009

Dreaming

Makenzie is CRAWLING!!!

Oh wait that was just a dream I had tonight when I fell asleep putting her to bed! Long day must have been tired! Now you all can kinda understand what it feels like to wake up and wish you where still asleep!!!! That was my dream! She was so cute! I don't dream much but when I do usally it is good!!! Sorry I didn't mean to get your hopes up! I am sitting here just thinking about when that day comes and how proud I will be!!! God can do it! God knows the plan and I hope this was just a window into what is in store for Makenzie!!!!!

Thank You all for your prayers! God is good and answered all of our prayers! God is so good and continues to show His hand in this families life!!!!! I am not going to go into detail as it is really not public information but thank you so much for all of the prayers! They mean a lot!!!!

Makenzie continues to do well. She has had a bit of a cold but it seems to be much better! Yeah!!!! It never did turn into anything big and bad! Another answered prayer!!! Thank You Jesus!

We started her on a new drug for tone reduction and I haven't really seen anything good or bad. We started out on a very low dose so hopefully as we raise it we will see reduced tone without all of the nasty side effects it could have.

The only thing I have seen is reduced eye contact. Now that could be from Makenzie not feeling the best, from the sensory learning, or the new drug. She is still tracking. Please pray for this to improve and not be from the drug! I am very anti medication and this is the first one that I have tried since taking her off of all medications 3 months after her injury! Please pray that Makenzie can benefit from this without the side effects that would cause me to have to take her off of it! It would be great if this could help her!

Other then that life is moving right along. Once again, thank you for all of your prayers and support! Keep praying and God bless!!!!!

Thursday, January 22, 2009

1-21

Wednesday, January 21, 2009 8:29 PM, CST
Please pray for my family as there are some trials that we need to overcome. Please pray that God will cover us with His blanket of protection. Please pray for peace and wisdom.


"I have given you authority to trample on snakes and scorpions and to overcome all the power of the enemy; nothing will harm you."
(Luke 10:19 NIV)



Dear Lord,
We thank you that your Word promises us authority to trample on snakes and scorpions and to overcome all the power of the enemy. We pray that you would help us fully understand how to wield the authority you have given us so that we can defeat the enemy who has come to steal, kill, and destroy in our lives (John 10:10). We thank you that as you teach us to overcome, that nothing will harm us. Lord, we ask that you would protect each and every member of our family as well as those who pray for us. We thank you for your promise in Psalm 91 which says, “I will rescue those who love me. I will protect those who trust in my name. When they call on me, I will answer; I will be with them in trouble. I will rescue them and honor them (NLT).” Father, we thank you that in every circumstance we face, we can trust in you to protect us, and that you give us the authority to overcome. Although it is sometimes a long, difficult process, we are grateful knowing that you will bring us to a place of victory and peace.
In Jesus’ Name,
Amen

Tuesday, January 20, 2009

LIFE

Didn't the kids just go back to school from Christmas break? We had another day of day and played a good game of LIFE. HMMMMM if only it was easy that easy to go to college, get a job, get married, have babies, get raises, and make in the millions.... all in 2 hours or less!!!! The boys had a great time!!! It was so funny when one of them would try to go the wrong way... my 7 year old would speak up and say "nope you can't go backwards in life" oh how I wish it was possible!!!!

Makenzie is doing great!!! She has been standing great and supporting herself! Now she doesnt have much balance but the weight bearing through her legs has been wonderful!

She was following my brothers cat around the kitchen on Sun and she just smiled! I turned her away from the cat and then asked her where the kitty was. Guess what?....... she looked right down at it!!!!!!! We did this about 5 times and she got it right every time! She looked DOWN!! Do you know how great that is!!! Thank you sensory learning!!! Oh and she knew what the cat was!!! Oh and that would be following directions. Improvement..... most defenatly!!! God is great, God is Good, and we thank Him for all of these miracles!!!

I do however think that Makenzie may be getting a cold. she seems very congested, a little cough, and has been a bit cranky. Please pray that this doesn't turn into a full blown cold!!! We have a busy week this week and I really need her to be well!!!!

Thanks for all of your prayers and support!!!
God Bless, Pam

Friday, January 16, 2009

1-15

We have made it through a entire week of normal life! I guess we still have tomorrow but Fridays are a bit less crazy!

Makenzie did great at school this week! Her teachers said she was so happy! They love her there soooooo much! I was a bit worried about kenzie getting over stimulated after doing the sensory learning but she did great!!!!

We have seen some nice things from sensory learning. Although small every little thing counts!!!!

Her left leg was hurting about a month ago and then last week her right one started in!!!! AGHHHHH! She doesn't seem uncomfortable when this happens but she wont put weight on it. Her PT and I were talking today and we have come to the conclusion that it may be a bit tight but that the issue is that she is really starting to feel her legs and to her it is strange and she doesn't quite know what to make of it!

When I stand her up she will lift her foot up and start to put it down and then lift it again. It is so cute! I then tell her to put it on the floor and she will and then she is ok! It just take a bit of coaxing and letting her know that her leg is supposed to be there and on the floor!!! She LOVES too take walks around the house so it isn't to terribly hard to convince her that she is ok!!

She has also been pushing up and holding weight in her hands and arms MUCH better. The right is still better then the left but the left seems to be following suit pretty well! I can put her in side sit and she will sit there like it is no big deal! Then she gets excited and extends and falls over!! She thinks falling is great! My silly little girl!!!!!

She is also doing better with her oral eating! I was feeding her today and she was opening an closing her mouth on command to get the food. I love how much language she is understanding!!!!! Following directions is also something she is getting really good at too!

I never stop being amazed by her!!!!!!

Keep Praying!!! God Bless, Pam

Tuesday, January 13, 2009

Normal?

OH HOW SWEET IT IS.......

to be back to a normal schedule!!!!!

I had no idea how much we relied on a strict daily schedule!!! It is amazing how much smoother everything goes!

Makenzie went to preschool for the first time in 3 weeks! Her teacher said she was so happy and giggly! She loves school! I do too!

When I got up this morning I had no idea that they had called for snow!!! There was a lot of it!  I debated on if I was going to take Kenzie out in the weather to get to school. Then I remembered that I had to go fill her reflux meds so I figured if I had to go out anyways I would just bring her! As I walked into Target I realized that this was the first time in 3 weeks that I was completley kidless!!! It was great!!!!!!

Makenzie did great in therapy and got a couple really great
massages! I kepp wondering where mine is!!!!!

Not much else to report but please as always keep praying for Makenzie! We now start to prepare for suit therapy and Disney!!! I can't wait for the day when I can see the light at the end of the tunnel and not be preparing for any major trips! The day when she doesn't need any of this! The day that the only trip we take is the one to Disney or where ever.....all of us.... just for fun.....for no other reason then because we want to!! Oh that will be the day!!!! Please pray for that day to come soon! The day that Kenzie's face will light up when she sees Mickey Mouse! The day that she can look up at me and say "Look Mommy... its Mickey" and wiggle out of my arms to run and give him a big hug! Oh the sweet simple things in life!!! PRAY for that day!!!!! Tons of thanks to all and God Bless Pam!

Sunday, January 11, 2009

We ARE DONE!!

It was such a relieving feeling to leave Boulder and know that we were done for at least another year! The people at the clinic were wonderful and I will miss that but not the drive for sure!!!

We still have 18 days left to sit in our dark closet twice a day and look at the "pink" light but at least we don't have to drive there!

Makenzie seems to be more alert and the strabismis (eye crossing) seems to be a ton better! She has also been tons more vocal and making new noises. Her response time is faster too.

I am so excited to get to go to church tomorrow and get back to a regular schedule on Monday!!!!

Makenzie had therapy this week on top of Sensory Learning which was great! 2 weeks with no therapy is not a great thing!

We also started going back to the chiropractor this week. I haven't taken Makenzie for a while and her PT asked me Monday if I could bring her because she was starting to get stiff in some of her joints and her neck was too far forward. Boy, what a difference it makes for her!!! Her therapists and I could tell a difference right away! She was having a bit of a hard time holding her head up and fixing a lot in her mouth and after her adjustment she looked much better!

Please continue to pray for healing for Makenzie!! She is doing so well! God is so good!!!! Pray for our next adventure to LA in July for Suit Therapy! Pray that Makenzie is ready to learn, gain strength, and heal! She works so hard! I am so proud of her!!! PRAY, PRAY, PRAY, PRAY, PRAY!!! God Bless, Pam

Tuesday, January 6, 2009

Sensory Learning

We are over half way done with Sensory Learning! Yea! Tired is putting it lightly! I am still trying to decide if it would have been easier to just go to AZ! It has proven very hard to be here and do such an involved therapy! For much of the first week the boys were with my parents and that was helpful! Now I feel as though I am running around like a chicken trying to get the kids to school, run to do therapy, make it all the way back for the kids, do favors for friends, cook dinner, do laundry for everyone, keep the house half way clean, run to the bank, pick up things at the store, and of course taking care of all of Makenzie's many needs, including fitting in all of her therapies on top of the Sensory Learning! If I was out of state more then half of that list would not exist! However, it is all getting done and somehow I am even finding time to update!!! Whew!!! Can I breath now!

Makenzie is doing well! It is really cool to see what a different kid she is since the last time we did this 8 months ago! Last time was better then the first but she still spent much of the session crying. If she wasn't crying she was just quiet. This time we have had a few tears, mainly the first day, but now she is tracking the light so much better and lays there looking at the light and babbles and complains but it is so much different then the crying! S

She too is tired but continues to sleep very well at night! The car ride also has been good! This is also a huge change! Makenzie in the past has hated the car! Screaming, coughing, holding her breath to the point of turning blue and other then the first day she has been a little angel! Someone knock on some wood for me!!! LOL What a different kiddo!!! I am as usual... so proud of her!

It will take a bit for her brain to intagrate all of this new information but every time we have done this she has shown improvement!

Well with that being said it is now time to start working on the above list so that I might get to close my eyes for the night before the clock strikes midnight and I turn into a pumpkin!

Thanks for all of the prayers! Keep praying! God is so faithful as He hears and answers our prayers! Thank You all and God bless!

Friday, January 2, 2009

Happy New Years

HAPPY NEW YEARS

Well, I had a big update all typed up and when I went to post it the site had times out!!! Sorry, I don't have the energy to redo it but I will shorten it up for you!

This year has been great! Lots of change for the better, tons of healing and restored hope!

2009 is going to be a GREAT year!! We have some big stuff ahead and Gods hand is in all of it!!!

We are going to California in July! Suit therapy here we come!!! Even more exciting...... I will be able to see my children's faces light up when we all walk into the most magical place on earth for the first time!!!! Thats right we are off to Disney Land this summer!!!! I can't wait!!! This is a dream I have had for 11 years now and it is finally going to happen!!! (THANK YOU mom and dad!!!)

Sensory learning is going well! Makenzie was very emotional today which is great! It is suggesting the therapy is working!! She had a hard time of it the first day! She cried the whole way there and back. (2 hours) I almost threw in the towel! I am glad I didn't day 2 and 3 went much better with no tears!

Next week we are back to therapy! No school because of the Sensory learning but that will be done next Sat. I am sure she will be excited to be back to normal life! I know I can't wait!!!!!

We brought in the new year in style! We spent it with some very special family and friends. We talked and laughed, played games, and cheered the new year in! After the ball dropped everyone there laid their hands on Makenzie and prayed for her! I got to meet a very special young man named Josh. Several years ago on New Years Eve he almost lost his life! He was also deprived of oxygen. He shared with me what it was like to almost die and how peaceful heaven is! WOW!!! God sent Joshua back to earth from His throne surrounded by Angles because He was not done with this amazing soul!!! It was the most perfect way to bring in the New Year! God is here and will continue to carry us through all of the good and bad times of 2009!!!

Thank you all for hanging in there with all of us this year!!! Keep praying for Makenzie! This year is going to be amazing!!!! God Bless you all in 2009!

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