Wednesday, September 9, 2009





Yesterday ended with a bang and a broken pump at 1am! Remembering that Makenzie was NPO all day! I called the HHC and they were so kind as to bring us a new one around 4am. I was passed out! He tried to call me 3 times. My phone was right by my head and I did not hear it at all!! So needless to say after being completely exhausted I did not get to bed until 1:30am this morning and it was very hard to keep my eyes open and pushing forward today!

Makenize did well today! She had GREAT therapy and both her PT and OT were amazed at how much looser her legs were! I guess all of the stress of yesterday was worth it. We also noticed that her upper body tone and movement was MUCH better!

She did vomit several times which seems to be the trend after anesthesia for her. She is sleeping soundly right now.

My whole body aches from carrying her around all afternoon yesterday! She is getting so big! She weighed in at 29 lbs! WOW!!!

Today was a bit better other then my son missing the bus 2 times! I am OVER tired! Waiting for 12 am to come so I can give Makenzie her Zofran and fill her food bag and crawl into bed!!!

Please pray for no more vomit! Please pray for good rest tonight as I am feeling VERY worn down! Please pray that I can get motivation to get this house cleaned up and all of our stuff packed with out to much undo stress! Pray for safe travels to CA and for my boys safety while I am gone! I think I am too tired to be excited at this point but I am ready for a break from reality even if it will be spent doing therapy! I will miss my boys terribly and wish that they were coming with me! I know however, that they would be bored out of their minds!

Please pray!

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