Saturday, February 21, 2009

Button Troubles!

Hey all! I have tried to update for the last 4 days and each time it has not gone through! I hope this works!!!!

We have good! The kids had off for a 4 day weekend last week. We made it to the rec center for some swimming, sliding, splashing, and tons of smiles and giggles! Makenzie loves the pool as do the boys!

We also went bowling! Makenzie helped me bowl! I think she did better then I did! She loved walking up the step and to the lane where we had a ball ramp for her. She stood up next to the ramp and helped me push the ball! She LOVED it!

Tonight was another adventure! The boys went over to grandma and grandpa house. Just after they left I went to pick Makenzie up and had my knee on her tubing.... out came the front of the button used to feed her!!!!! So intead of going to PF Changs for dinner we ended up with Good Times on the way to the ER!

Her tube has to be put in by x ray to get it up into her intestine. We have had TONS of problems with our hospital in the past getting this fixed after hours so I was ready for another fight. I was pleasently suprised this time!

The last time this happened it took them over 24 hours to get her button back in! I contacted the hospital and spole with a patient rep and the head of Radiology and I guess someone finally listened and took action to fix this!

It still took about 4 hours in the ER but we came home with a new GJ button and she is sound asleep getting fed! YEAH!!!! Thank You Children's for listening and taking steps to improve this process!!!

On top of that when I went in I told them that Makenzie was immuno suppressed and they got us right into a room so that she would not be exposed to all of the germs in the waiting room! WOW! I am so impressed with this visit!!!

Please pray that Makenzie stays well and that any germs she was exposed to will be fought off and will not make her sick!!! We did everything possible to protect her and the rest is in the Lord's hands! Thank You all for your support! I am off to bed! it has been a long night!!!! God Bless Pam

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