Friday, November 28, 2008

Happy Thanksgiving!

Today was a busy, busy day! We got our tree up this morning! We usally do this on Friday or Saturday after Thanksgiving but the boys are going to the cabin tomorrow for the rest of the weekend. Zachary is going to go skiing with my brother for the first time on Sat! He is going to have so much fun!
After the annual game of football, the boys all came home hungry and ready for dinner! Turkey, turkey, turkey!!! All in all it was a good day!

Now, for the real reason for the season! Thanksgiving! I have so much to be thankful for! I could sit and list on night but I think that you all know what that list is and yours is probably similar! For me this year I have to say that the thing I am most grateful is what the last 2 years of my life have done for me. Now before I go on, if I could take back March 25, 2007 I WOULD! I CAN'T! So.... with that said I am so thankful that God have touched my life! he has showed me his hand in so many ways and I don't think that I would have ever opened my eyes wide enough to see the things he is doing and has done for me in the last 29 years! I am thankful that God has drawn me close. I can truley say that in the last 2 months I have been touched by His true peace. I feel so at ease! My princess is in His hands and what is going to be will be! God has opened so many doors for me lately! He has reveled Himself to me in many very obvious ways and showed me that before I need my Makenzie to be healed that I need Him! I will never give up and I will never stop asking God to continue to heal her but giving it to God sure does make every day a ton easier!

Just like the 3 men in the parable with the idol and the firey furnace, their unbending Faith to say that they would not bow down to good ole Nebby's idol. When told they where going to be burned alive their response to him was that God would save them from the flames.... but if not...... I choose to believe that God can heal Makenzie.... but if not..... I know that He is still in control and has a plan! It will be ok and Makenzie is doing so well so Thankful does not even begin to discribe how I feel tonight!

I hope all of you where blessed with family, friends , and food on this thankgiving. More then that I hope you felt God's hand touch your life!

I posted new pictures on Makenzie's dropshots site. I set this site up a long time ago but didn't use it because you can't post many pictures and no videos so if you click on the links tab above and go to www.dropshots.com/makenziesmiracle
it should link you directly to her pictures and videos. Check it out! Oh and I know it is not new years but for some reason Caringbridge won't let me change the back ground! I want my blogger site back!!!!!!! TEARS!!!!! Keep praying!!! Prayer works!

Wednesday, November 26, 2008

Wedding Fun

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My brother is off the market!!! We spent this weekend celebrating his wedding! It was a lot off work but a TON of fun! It was a beautiful wedding and great party! I finnaly have a sister! His new bride is a wonderful woman! I couldn't have asked for any better sister in law of aunt!

Makenzie did GREAT!!! We didn't get home untill after midnight last night! She was so happy! She loved dancing with her uncle, brothers, grandpa, and mommy! She even did the congo line!!! She was so cute!! The boys also had a great time!!! Kaleb was so handsome in his tux!!!

Makenzie is doing well! She is tolerating her feeds great! We put her back on her reflux meds and she hasn't had any puking episode in 2 days!!! Yeah God!!! She also is only refluxing 2-3 times a day!!! Well I am off to bed! It is Monday again...... back to the grind!!!

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Tuesday, November 25, 2008

Grasp and Release!

I just thought that I would give a quick post tonight. Makenzie continues to do really well! She just continues to amaze me! I was talking to her PT yesterday, she was doing a recertification for her services and a paper fell out of her file. It happened to be a recert from almost a year ago. Last year at this time Makenzie was working on getting into ANY position that wasn't a ball without puking. THAT'S IT! Now we are working on rolling, sitting, all fours, standing while holding onto a walker, and so much more! God is so GOOD! If you can't see the Miracle's in that.... you must be blind!

In therapy yesterday Makenzie was standing up next to her walker and was holding on with her whole fist open and her thumb all the way around the handle...wow! Her therapist sat her down and asked her to let go and one hand at a time she took both hands off of the walker....wow again. Then when stood up Makenzie was asked to put her hands back on the handle and guess what.... one hand at a time she lifted them both up and opened her hand and placed them on the bar....... HOLY COW! You all should have been here to hear the uproar in my house yesterday morning! I know that most of you don't understand how big this is but it is BIG!! It means that Kenzie knows that her arms are there and now can begin to learn how to use them again! It, as always is slow, but she is healing!!!!

Her speech therapist at school is also amazed! She was telling me yesterday after class that they were singing Old Mac Donald and she got to make the animal sound with a switch and on cue she would push it to make the sound in the song the class was singing...... AMAZING!!!! I am running out of Adjectives! To say the least she gave us all a great Thanksgiving present!

She is also sitting much better. She is pushing with her hands and keeping her balance. She is holding her head and trunk up too! She used to sit all folded up and every once in a while she would lift her head. Now she is sitting upright and dropping her head much less! It is so great to see! She is getting so close!

One more Thanksgiving thought. I will write about the many things I am thankful for. More to benifit me then you but for tonight her is a list of Thanks that my 7 year old wrote at school

I am thankful for

scool (school)
natcher ( not sure)
gray wolf's
cherch (church)
god (God)
my broter (brother)
my sister
my mom
my dad
my friends
my grate grandma
my grate grandpa
jesus
houses
and chrismis (Christmas)
thanks giving
vetern's day
usa
and
I don't think he was done!!! HEHE

Keep praying! God hears us and listens! Remember in this season to also give thanks to what God has done for our family! Thank you and God Bless!

Sunday, November 23, 2008

I Passed!

Well, once again it has been a very busy week and weekend! I took my State Boards on Sat. and passed!!!! Whew, what a relief! Makenzie is doing well and is ready for a short therapy break! (she told me so...LOL) She has been babbling a lot and has be rolling more too. She of course is also still a wonderfully happy girl! Thanksgiving is coming up so fast and of course the 3 days before then are PACKED! It will be so nice to spend some time with my extended family. It has been too long! Maybe it will be a relaxing day! That would be a first in a long time! Well not much else to say. Please keep praying for Makenzie and our family. Thanksgiving always brings so much but in the past 2 years I have realized how much I have taken for granted! I think this Thanksgiving I am most thankful for God's Peace! It feels so good to know that His hand is working in my life and that He is in total control! Thank You Jesus! Until next time take care and God bless!

Here is a little side note:
Here is a verse and prayer that God gave me this week during a rough time. God just continues to show up in my life and it gives me so much hope and joy to know that He knows and is in control. Miracles happen every day and the thief does not have the power to destroy those who believe!

(Jesus speaking) “The thief does not come except to steal, and to kill, and to destroy. I have come that they may have life, and that they may have it more abundantly.”
(John 10:10, NKJ)


Dear Lord,
I pray today that no plan of the enemy to steal, kill, or destroy this family or Makenzie will prosper. I pray that you would expose every area of our lives that the enemy has targeted for destruction. I thank you that you have a plan to strengthen every area of our lives that are weak and vulnerable to the thief. I thank you, Lord, that you have come that we may have life, and that we may have it more abundantly; and that you long for our family and for Makenzie to have vitality and strength. Grant us new levels of physical life and spiritual life that are rich in quality and quantity. Restore that which has been lost along the way and bring us into all the abundant life you have for us, regardless of the autism or any other struggles we face.
In Jesus’ Name,
Amen

Thursday, November 20, 2008

Special Prayer Request

Tonight I am going to ask you for favor. I believe that in some way we are all broken. We all have different crosses to bear. Some are just more visible then others. My family's cross happens to be the tramatic accident to our daughter and sister, Makenzie. Everyday life seems to get a bit easier but the loss will never fully go away. Trusting in God' promies helps and brings me much hope and comfort. However, I am human. Don't get me wrong, I am not sad tonight. Makenzie continues to make wonderful improvements. I love her more then ever!

I would like you to pray tonight for my whole family. Please pray for yet another miracle. My other kids have been through more then most elderly in the past 2 years alone! Pray that God will protect their heart and have them to grow up to be the men God made them to be. Please pray for Chris and I. Pray that as a mommy and daddy of a child that we can not fix, that our hearts would be healed and protected. Pray for the miracle of healthy relationships. Taking care of Makenzie is a 24 hour job and then there are 5 other people in this family that have needs. After 2 years tired does not even begin to discribe the overall mood!

As Thanksgiving approches I have so much to be thankful for! God has been so present in my life and His holy Spirit has blessed me with peace, hope and the understand that I am not in control. Everthing is according to his plan and sometimes I don't understand but I am learning to trust more and more everyday! So God, bring it on, let's see what you've got! Thank you all for the thoughts and prayers! They mean so much! We love you all and could not have made it this far without your help! God bless!

Wednesday, November 19, 2008

My Hands

Well I had a long post going and I am not sure what happened so tonight you het the shot version. . Makenzie had a great day! She has made some very good gains in the lst 2 weeks! She is starting to use her arms so much more! All of her therapists and teachers are amazed. God is so good!! She has been helping pull her hands out of her shirt and putting them back in! She held onto her walker and put her right hand back on whn is feel of! She had a great day! I am so proud of her! I don't remember what else I had wrote in my mysteriously erased post so I am going to say goodnight. We have a crazy busy day tomorrow! Please pray for Makenzie! She is in God's hands and he hears our prayers!

Friday, November 14, 2008

WOW

WOW


This week has been crazy to say the least! Crazy or not Makenzie is doing great!!! She is so much more aware and continues to follow directions! She is moving around a lot more and her head control gets a bit better everyday. She wants so bad to get up and play with everyone. God is so good! She used to just lay and watch but not really so any desire to participate. Now she gets excited and gets to moving and laughing. She has been trying to to get on to her tummy to push up so she can see more. With help she can lay on her tummy and push her arms straight and hold herself up! When she is in that position she is trying to lift up her butt and put her knees under herself. She is also moving her arms forward in a crawling motion! I am so proud of her!

Makenzie also rode on the trike today in PT and made it go forward by herself one time. An accident? Maybe, but I don't care!!! She loved it! I will be getting measurments and looking into different adapted trikes and then submiting a request to a non profit out here that should be able to get her one free of charge!

Life continues to change as it always does! In the past 2 years though I have tried to really sit and listen to what God is saying and what he wants for me! I continue to be amazed by his unfailing love and direction that he gives. My life has been a rollercoaster for a long time and I really feel at peace today with the direction that God has been sending me in. Thank You God for the open doors and the peace that you have given to my family!

I hope all is well and once again thank you for your prayers and support! Makenzie is in God hands and some days I wish I could be her! Always happy, laughing , smiling, easily entertained, and loved by more people then I could ever count! God hears our prayers! Keep praying! We are seeing miracles every day!!! Thanks and God Bless!

Friday, November 7, 2008

Happy Days

Makenzie is doing so well!!! She has been holding her head up much better and babbling a ton! She is still following simple directions almost 100% of the time! She had PT at Children's this morning and she was pushing up on her stomach and I told her to kick her legs and well...... she did just that! She gives this huge smile because she knows that she did it!! It is so cute!! She is sitting much better and when the flexion gets the best of her and her head drops she has been bringing it up soooo much better! Now we need a corner chair so that she can be upright more and work on her trunk strength, There are a few companies that do equipment exchange and I have a call in to our DME supplier to find out if the insurance company will cover it. We shall see! one little chair with the word therapy or adapted in its discription will run about $1000! Crazy huh?

Makenzie also rode on a trike today during therapy! It was awsome!!! There are also organizations out there that will help us get an adapted trike for Makenzie! I am going to start working on that in hopes that by summer she will have a new toy to ride with her brothers in the sun shine!

We had an appointment with GI on Weds and it went well! her doctor was impressed with how well she is doing with the bolus feeds in her stomach! We talked about what the plan is and decided that slow and steady in the way to continue. He also suggested that we try adding a 4th feed in. I don't know if that is going to work however because between school and over two hours of therapy there is just not enough hours in the day.

Then we head down to radiology to have her tube changed and they had a doctor who didn't have a lot of experience with placing a GJ tube do the procedure. Needless to say she messed it up and by the time they got an experienced doctor in there Makenzie's gut had shut down and her intestine was spasming and they could not place the tube! We left the hospital with a g tube and the far fetched chore of trying to add 17 oz of liquid in to her G tube feeds on thursday. She did really well and tolerated 3 feeds of 8 oz with out any vomit but we were still 10 oz shot of her daiiy needs. So this morning we went back to radiology and had them place the GJ tube this morning befor therapy. I took less then 10 min! Too bad they did not just do it right the first time!!! Oh well it is fixed and we are back to normal!!!

Please keep praying for Makenzie! She is doing so well!! We continue to feel all of the love and support! We could not so this with out all of you! Hope everyone has a great great weekend and God bless!

Sunday, November 2, 2008

HAPPY Halloween

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Photo Sharing - Video Sharing - this week! It was so cute! They were playing and Makenzie would lift her head up so her PT put her next to her and told her that they couldn't play until she lifted her head and right away she put it up and they didn't have an more head problems!!! She is such a stinker!!!! She understands so much!!! She is also sitting a ton better and when reminded to push while in sitting,she will. I am so proud of her!!!!

I was gone for almost 4 weeks all day doing my CNA class and got to see her PT for the first time yesterday. I felt so good because the first thing she said to me was they all of her therapist could tell how much I was doing with Makenzie because while I was gone it took them much longer to get through her tone at the begining of the session!!! She was taken care of very very while while I was gone but all of the extra work that I do with her was validated!

In PT on Fri we took Kenzie out to the new trampoline and she loved it! Even though the trampoline was given for the boys, I think Kenzie will get a ton out of it too!!! Her PT showed the boys how to do a bunch of new trick on the tramp too! It was a great time!!!!

We went trick or treating on Friday. We had a great time and the Kids got WAY to much candy!!!! Makenzie lasted for 2 hours!!! She giggled and just took in all pf the kids and light the whole time! She thought the guy on the porch with the chainsaw was a bit scary but so did the boys!!! I had to koax Josh to go ring that doorbell!!! It was really cute!!! Well the time it changing and it is much to late for me to be up!!! More to come.....

Keep praying for Princess Makenzie!!! We are so greatfull for all of our prayer warriors!!! Thank you!!!




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