Monday, October 27, 2008

CNA

I am so sorry that I have been so absent lately! I have just about finished a three and a half week nurses assistant course! What does this mean you may ask?...... It means that once I get done on Weds. I will begin to get paid to work for Makenzie as a CNA!!! 6 hours a day 7 days a week!!!!! It has been a very LONG 3 weeks but I made it through!!! I want to say a HUGE Thank You to my mom and friend Erica for putting up with my high demands and to her OT and PT for coming EVERY day for three weeks!!! You all are life savers!!!! Makenzie has done great!!! She has also still been going to school all by herself and that also went well! THANK YOU!!!!!! Thank you also to our GREAT GRACIOUS GOD for giving me peace about leaving Makenzie!! I, until the beginning of Oct., have not left Makenzie for more then about 1 hour since her injury! So being away Mon through Fri form 7:30am until 2:30pm was a huge test of my faith and drive to help make my life better! The company that I will be working for is a great company and offers all of the standard benefits and even though I don't have to leave my home... on paper it will look like I have professional job experience!!! It feels so wonderful that if nessesary I can provide for my kids!!! Thank You Jesus for opening the doors for my family to be able to do this!!!

This has also made me realize that I am very smart! (sorry, my head still fits through the door) I also realized that even though western medicine drives me crazy there is so much I have to offer and feel very led by God to begin the slow uphill hike to a degree and PA or nursing school! There are so many people out there is the same shoes that need some one who gets it and can tell then on their darkest days that there is still hope!!! I am guessing that this will be a very long (10 years of so) process but in 10 years life will be so different then it is today! I will keep you updated on these thoughts and dreams!!! I have decided that I will think in the now and take one day or class at a time and only by the Grace of God get across the finish line!! Tecnology is great because I can do the first couple of years at home on the computer!!! Pray Pray Pray!!!!

Well that is all for now!!! Got to go get Kenzie who has decided to roll to the other side of the family room is now stuck!!! Keep Praying for My little Princess!!! I will try to get some new pics up soon!!!!

Thursday, October 9, 2008

Busy days!!!

Sorry I haven't posted in a while....life has been CRAZY!!!!! Makenzie is doing great! She has done wonderful in therapy and her feeding has been going well! Orally she is still about the same but we are now .5 oz away from being half way fed in her stomach instead of her intestine! That is really great! To me it means her body is healing and we are on our way to more brain healing! On Sat. we will be moving to 4 oz, 3 times a day in 15 mins!!!! I have decided that it would be a great Christmas present to meet our goal at the begining of Dec! It has been really hard for me to take this slow and not up the feed earlier! I want her to succeed and I think that her GI doctor is right in taking it this slow! She has never done this well!!! Thank you Jesus!!!! I can't wait to be done with the night feeds!!! Getting up to switch her formula to water at 2 am every night is getting old..... fast!!!!

I spoke with a nurse at the Hospital yesterday and I think I am going to set up an appointment to try a dose of Baclophen (muscle relaxant) into her spine. Makenzie is tight. Not half as tight as she was but I want to be able to know if this will help. I will not give this med orally because it makes her dopey!!! Given into the spine it has a ton less side effects. It would require a surgery and pump into her stomach area. If we did this there would be no more HBOT. I am just thinking about this and without the test dose I don't know if this treatment wis even on the table! The test will let us now if it is even something to think about. I spoke with a parent whose son had a baclophen pump placed 4 years ago and it has been amazing for him. He went from no movement to reaching out for a toy within 45 min of the test dose being given! I at least want to know! Please pray for this decision! If she has good results that will bring on a whole new monster!!! Please pray for Gods leading!!!! Thank You!!!!

Wednesday, October 1, 2008

Slow and Steady Wins the Race!

Life has been alright! We are almost back into the swing of things. Makenzie is doing well and is still tolerating her G-tube feeds. We are now up to 3 oz in her tummy and she is doing about the same orally. The eating thing is still slow but she is not gagging, chocking, or asperating so we will wait on the Lord and know that in his time it will come! She loves to lick Teddy Grahm's and pretzel's! It is so cute! She is still fairly loose and did a good job of sitting alone today. She is going to go back to school tomorrow for the first time since we have been back from AZ. I am sure she will be so happy!

We saw Kenzie's rehab doctor this week and she was very impressed with Makenzie's improvement. I love her doctor. We sat and talked for about a half an hour and she asked me why I had made the appointment. I gave her a confused look and then she said... "you already know all of this stuff... what do you need me for"..... She is so supportive!! Makenzie is still very tight in her arms and shoulders. I asked if we could do a test spinal Baclofen (muscle relaxer) to see what would happen if we totaly loosened her up. She said yes of course. The only problem with that is there is only on way to get that drug into the spine and that would require a pump to be surgicly placed in her stomach area. I am not going to do that. So if it was to work then what!? Then I will have a new issue!!! I would love to see my princess loose as a goose for a time though!!

Please continue to pray for Makenzie and our family. As time goes by and life changes it is hard to know which way to go! Pray for direction through God's leading! Life is such a roller coaster and with 4 kid's lives hanging in the balance it is hard to always know what is the right thing to do! We could not live this life with out all of your prayers and support! THANK YOU! Keep praying! Prayer Works!!!1


"“Patient endurance is what you need now, so you will continue to do God's will. Then you will receive all that he has promised.” (Hebrews 10:36, NLT)



Dear Lord,
We know that your Word tells us that you are faithful to complete the work you have begun. Thank you for the work that you are doing in each of us to draw us into a victorious and joyful life in you. We especially thank you for the work your are doing in Makenzie. There are times when we see progress, and times when progress seems very slow. It is easy to wonder when we will see a shift. We long for the day when certain milestones will be reached. But, Lord, you have a plan. Help us to understand what our part in your plan is and to do it faithfully, and help us to have the patience we need to leave the rest to you. And when we become frustrated or impatient with your timing, help us to remember that if we endure, we will receive all that you have promised. You are faithful and trustworthy, and we thank you that you have not forgotten us, but are at work on our behalf.
In Jesus’ Name,
Amen

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