Well, Makenzie is still sick! Her fever is gone but she is still super congested! Even on the decongestent, snot is coming out of everywhere! Please say an extra prayer for healing from this sickness!!!! We have a very busy week next week! My brother is getting married and all off our relatives will be in town! We have tons to do on top of all of her therapies and an IEP meeting for school on Monday!!! She has still been smiling and laughing which is great but overall she feels horrible! Please pray!
Saturday, May 31, 2008
Thursday, May 29, 2008
Makenzie had a really rough day! She has bogers everywhere! The postnasal drip ends up in her stomach and causes her to puke mucus and acid every where.... all day! She is not tolerating her feeds and had a temp earlier of 102.4. She is not sleeping well and it is warmng up here so it is hot in our house. It is now 10pm and I am exhaused! I get to stay up untill 12:30 to give her more medicine and fill her bag with more pediatlite.
Please pray that she will get over this quickly!
When we bought this house we had central air put in but the unit that was intstalled is way to small for our house! You could run it all day and it cools it a bit but not the way it should! Makenzie has been through enough! She deserves to at least be comfortable while she sleeps! Not to mention, the boys are already miserable too.... it isn't even June!!
Pray, Pray, and Pray harder! Makenzie is doing well except for this cold! We are so proud of her!!!! God is so good! He keeps providing for our family and I have no doubt that he will continue! Thank You all for your love and support! You are all a huge blessing!
Wednesday, May 28, 2008
It is so good to be home! Makenzie is doing very well. She has started back to all of her therapies and really enjoys them. Her PT has gotten some of her muscles that had tightened up a bit looser and she has been doing great!!! Today in therapy her therapist said that she noticed Makenzie's head control has gotten a lot better and she has more extention in her lower back! Yea Makenzie! I can't wait to ge the suit and start using daily!
Makenzie loved the sand at the beach so much that we decided to bring the beach to our living room.... aka therapy gym! We found a sand and water table that is a perfect height for Makenzie to stand next to and play! She LOVES it!!! I took some pictures and posted them below. (Thanks Ralph and Joyce!)
Well I need to get to bed. Thanks and continue to keep praying! God is so good. We are so blessed! Believe!
Monday, May 26, 2008
Sorry it took so long to post. We are sare and sound back! It was a very long day but everything when very well! We flew from Ft Lauderdal to Orlando and Orlando to home. I have never had a layover any where so i was a bit worried. Everything when just fine!
I want to just say again how blessed we are! This trip was not what I expected but it turned out better than I could have ever imagined!!!! I am so blessed to have so many that love and care for us walk with us down this pathway to healing!!! People that I didn't expect to and didn't have to! You all know who you are and what you have done! Thank You! It was an amazing 3 weeks!!!
Here are a few more pictures of suit therapy and one of Kenzie since we have been home. She is doing so well! We are also in the process of buying a "suit" for Makenzie! I am very excited to see how it will help her!
Thanks for all of the thoughts and prayers! Keep praying! Prayer Works!
Friday, May 23, 2008
Well I think I am all the way packed and ready to go. We will be leaving tomorrow morning on our 6 hour trip back home. We had a GREAT trip! It had its ups and downs but all in all is was wonderful.
I am VERY excited to be home with but family and friends and at the same time I am not ready to leave to new people in FL that I have grow to love, It is such a great thing to go to a new place and meet other parents who share some of the same struggles and joys that I have. I will be leave here with plenty of new phone numbers and e-mail addresses. I also feel so blessed to have fellow Christians come and walk by my side! Both here and in Arizona I have had an outpouring of love and support from very loving and giving people from churches in these cities! I stepped out of my comfort zone last week and agreed to stay with a family here in Ft. Lauderdale. It has been GREAT! I have been able to relax a bit....... ok a LOT, after therapy. I was able to enjoy time with my daughter and spend time with some very special people instead of sitting in a lonley room at the Ronald McDonald House. Don't get me wrong the RMDH is a great place, but there are so many comforts of normal living that don't exsist there.
You know who you are and I Thank You from the bottom of my heart!!!!! What you have done for Makenzie and I will NEVER be forgotten! Thank you, thank you, thank you!!!! I think my daughter now has a new set of grandparents!!!
We also went to see the ocean one last time this afternoon! I was so beautiful. Makenzie loves the ocean! I think I have said that many times befor but it just overwhelms me every time I take her down there and put her feet in the water! She just laughs and laughs! She also follows the waves in at out from the shore back into the sea. I think we will be going to the resivour this summer. I don't think it will be quite the same but as close as we can get!
Thank you for your prayers they mean so much to us! Keep praying!!!! Also, watch for lots of pictures next week! We have tons or therapy, the beach and of course Disney World!!!!! Well time for bed! We have a long day ahead of us tomorrow!
Wednesday, May 21, 2008
Tuesday, May 20, 2008
Here are a couple pictures of Makenzie on the beach this morning for therapy! I am not sure why they are so big and sideways! I resized and rotated them! Hopefully it will fix itself! She loves the beach but boy was it HOT! She did well today and seems to be feeling better. She still has a bit of a runny nose and is more fussy than normal but she is tolerating her feeds and is sleeping a lot better! Thank You all for the thoughts and prayers! I am very ready to come home and be with all of my family and friends! Please pray for strength and health to finish out the last 3 days and make it home safe and sound!
Sunday, May 18, 2008
Sorry about the delay in posting! Makenzie caught a cold on Friday night and has been VERY cranky!!! I took in to the ER on Friday afternoon and it is just a virus! That is good and bad. No medication will cure it so we just wait it out. She is doing much better totay but is still not tolerating her feeds. I gave her pedialite most of today and she kept that down fine so she is well hydratrated! Thank You Jesus! She seems to be very tight and a bit jumpy as well but that seems to be getting better as well. We will attemept therapy tomorrow and see how it goes!
We went to church on Saturday with a family that we met at the Ronald McDonald house. It was a wonderful service. Everyone there was so kind and friendly and we learned a lot about The Jewish Christian beliefs. I am sure that I am saying that all wrong but that is the best I can do right now!!! The Rabi prayed over Makenzie and asked for healing! It was very moving and I am so greatfull!!! Thank You Donna and Matthew!!!
We came home and cleaned up our room and moved out of the RMDH and into the home of a couple from a church here in Ft Lauderdale. It has been so nice to be able to sit on the couch and just relax today and also have some great company!!! It gets very lonley being away from everyone and taking care of Makenzie!!! Thank You Joyce and Ralph!
Well, I am off to bed now! Gotta get some rest so we can start our last week here on a good, well rested note!!! Thank You all for your thoughts and Prayers!!! We are so blessed! Keep praying!!! Prayer Works!!!
Thursday, May 15, 2008
Makenzie is doing well. She is happy and continues to LOVE the beach! She is sleeping well..... except for last night but it still wasn't too bad. We are however continuing to have some difficulty in therapy. I do not however believe that all of it is Makenzie's refusal to participate. I am having some concerns with the clinic itself and would like to ask for prayers in being able to clearly and tactfully address these issues in the morning with the owner of the clinic. I know that God brought us here for a reason and since we have been here there have been some very interesting new ideas brought to my attention so I am trying my best to seek out what God's will is in all of this! Please pray that he would reveal himself to me in a way that I will be able to see and understand! Keep Praying for Restoration for Makenzie! Pray, Pray, Pray!!!!!
Monday, May 12, 2008
We had a GREAT time!!!! First and formost I want to say a special THANK YOU to our wonderful therapist! THANK YOU, THANK YOU, THANK YOU! We left Ft. Lauderdale about 7pm on Friday night. The ride up ther was good. Makenzie did ok in the car and only melted down a couple of times. We got to resort and checked in about 11.30pm and headed up to bed.
Disney World is so magical! Makenzie's favorite ride by far was Winnie the Pooh! She was all smiles and just took it all in! Coming in as runners up was Peter Pan, Small World, Snow White, Haunted Mansion, and The Pirates of the Carribian! We also went on Dumbo but it was way to hot on that ride!!! Disney has a pass for people with special needs and this was perfect! We didn't wait in any line for more than 5 minutes!
We also got to see the parade and the fireworks! Makenzie was so cute! The show was abolutly beautiful!!! I am so glad that we saw it!!!
Mothers day morning we had breakfast with the charaters of Wnnie the Pooh, fitting since Makenzie's favorite was the Winnie the Pooh ride! It also was fabulous!!!! THe food was great and the charaters were awsome!!!! We rodea few more ride on Sunday afternoon and then headed back to Ft. Lauderdale!!! I was so sad to go!!!! It was SO MUCH FUN!!!!
The car ride home wasn't as great!! Oh well. We made it back safe and sound and with time to go to the beach! We walked along the beach and played in the water a bit. Makenzie LOVES the ocean!!! She was doing tons of walking in the sand and we jumped in the waves and she laughed and laughed!!! Mommy had to be the party pooper because my back couldn't take any more!!
I am so greatful that we got to have this weekend! It was perfect!!! It was the first
time since Makenzie's accident that we have been able to be so normal!!!! It was a LOT of work and I am worn out but it was all so worthi it!!! So magical! Thank You again Ms. Lyn!!!! We love you so much! Not just because you gave us such a wonderful weekend but because you bless us with you love for Makenzie and desire to help! I could go on and on but that is going to have to wait untill we get home and are face to face!!! THANK YOU!!!!
On a more theraputic note, even though we didn't do "therapy" this weekend Makenzie did wonderful with her oral eating!!!! She had yogart, pudding, cotton candy, lots of water, watermelon, and mahi mahi (spelling?). I am sure I am missing something but oh well. She was also answering question with expression! It was so great to see! This morning she worked very hard in therapy! She is now down for a nap so we can start again tomorrow!!! I am bummed!!! Back to reality!!! I want to go back to Disney World!!!! I am excited to be back and to continue on with Suit therapy!!!
Well I guess that is all for now! I will post pictures when I get back. My camera is not working so I have to wait and get them when we get home! Thanks for the thoughts and prayers! Keep Praying! Prayer Works!!!!
Thursday, May 8, 2008
Well, It has been a long couple of days! Makenzie is doing great...... except in therapy! She did wonderful the first two days and well I think she is just too smart because she won't have anything to do with therapy now that she knows what we are there for and what is coming! She has spent the last two days screaming, holding her breath to the point of turning blue, and or course puking untill you stop doing whatever it is she doesn't want to do! Now to a degree this makes me laugh because she is so there and knows excatly how to get what she wants. On the other hand it is very frustrating because I know that she will get so much out of this therapy!
The people at Therapies 4 Kids are great! I spoke with the owner who also has a child with special needs and did suit theraoy with him. This is what prompted her to open this center because it helped him sooo much. We talked for a while and tomorrow we are going to try a new therapist and I am going to stand out of site for at least an hour of the session to see if that helps! PLEASE PRAY that Makenzie responds better tommorrow and for the remainder of our time here! I am very tired and torn about what to do! However, God got us here! He opened the doors and there is a reason that we are here! So Pray!
We are leaving tomorrow evening to go to DISNEY WORLD! Please also pray for safe travels!!! It will take us about three and a half hours to get there! The drive will be long but it will be worth it! Please pray for Gods peace and rest over Makenzie as she really hates to be in the car! Pray for SLEEP! Thank you all for you love and support and most of all your prayers! God Bless!
Just as I wrapped up this post I recieved this prayer! So fitting for today! Please pray it for my little princess!
"Surely God is my help: the Lord is the one who sustains me." (Psalm 54:4, NIV)
Dear Heavenly Father:
We are so grateful to you that you are our help in times of trouble and doubt. Lord, there are days which seem so discouraging and leave us struggling and downcast, but it is comforting to know that you are faithful to sustain us and lead us into the new season. Father, we especially ask for Makenzie who has many struggles of her own. Lord, we ask that in this day she would feel your sustaining presence to bring peace and encouragement deep within her soul. We pray that she would feel a tremendous measure of your love and hope for the good things you have in store ahead.
In Jesus' Name,
Tuesday, May 6, 2008
Whew! We made it through the first 2 days! It was great! We spent a lot of tome getting to know the therapists and the therapists getting to know Makenzie. They are all very nice. Makenzie did GREAT! She has been such a happy girl and has tolerated just about everything that they have thrown her way! I am so proud of her!!! She has been sleeping great too! Yeah God! I was very worried about that because it seems like that is the big thing that affects her when we change anything and has been one of the biggest challenges of her recovery! She was doing so well with that at home befor we left and coming to Florida dosen't seem to have effected her sleep patterens at ALL! I am so happy because this means healing! How and when you sleep is another thing most people don'e realize is also controlled by the brain!
Yesterday I took Makenzie to the beach! We had so much fun. I brought her not knowing if we were just going to look at the ocean or wade in it. Well we left the beach sandy and very WET! She loved it! I took her down and put her feet in the surf and everytime it came up and splashe on her feet she laughed! She dug her toes into the sand and then lifted them out! If a wave didn't come fast enough she would take a step forward. Before I knew it she was waist deep! She also sat in the sand and let the waves spash over her. She was so happy! Mommy trudged back to the car in her wet jeans and Kenzie sporting nothing but a shirt to wash off with a bottle of water! It was pretty funny! I started to feel a bit anxious about how we were going to clean up and get in the car with out making a huge mess everywhere and without Makenzie getting sand in her mouth. She loves to put her hands in her mouth and they were covered! That soon past when I realized that I have conquered so many more challenging trials over the last year!!! We made it home and strait into the shower we went!
Today ws fairly uneventful. We went to therapy and came home took a nap and then a walk. Washed some bottles, Did some laundry. Took a shower and into to bed!
Please keep praying! Makenzie is doing so well and we are so proud of her! She is a fighter! Her smile is enough to light up the world and she is toucing so many hearst! I am so honored to be her Mommy! Thank You Jesus for the Belssings of my children!!!
Sunday, May 4, 2008
The day started out at 5:30am! We all pilled in the car and headed to the airport. After check in, security, and breakfast, Makenzie and I made our way to nearly the back of the plane and were on our way to Florida! Kenzie did great the whole way! We watched a video, played with some toys and got dressed! She did not cry one time! Then came the fun part...... getting off the plane and to the rental car by myself!!!! It was a site to see!!! I piled all 3 huge suit cases on a cart, put the gait trainer on top of the sut cases, and the car seat was left to teater on the very top! I pushed that with one hand and the stroller with Makenzie, my diaper bag, lap top, and feeding pump which was connected to Makenzie with the other!!! WOW I am sure that started a few conversations!!! Then it was time to put in all in the car!!! First the carseat... well the seat belts didn't lock so I got to figure out the handy built in locking duhickys on the carseat on the spot! Then Makenzie in the car and spent a few minutes figuring out how to work the CD player so that she could listen to her music while I shoved the rest in! The Ronald McDonald house was very esay to find and less than 10 min from the airport. We checked in with them and then took 4 long trips tp the car to lug all of thoughs lovely suitcases up to the second floor and into our room. Mind you I am here alone so I got to carry the suitcases in one hand and Kenzie in the other! After I found my list for the store we headed off to Winn Dixie, the local grocery store to pick up the nesesary supplies that I couldn't pack and stopped by McDonald's to grab some dinner. Then we came back, I made formula, rearange the room. pluged in all of the chargers, put together Makenzie's chair and gave Makenzie a SHOWER?! There are NO bathtubs in any of the rooms here! That was interesting!!! Makenzie finaly went to sleep at about 8 pm and was pretty restless untill about 10pm. She is sleeping well now and that is so good because she is one exhausted little girl!!!
Anyways, that was my day! God is so good! Even though it was a ton of work to get here, we are so blessed to be here! Thank You Jesus!!!! Tomorrow is a new day and we get to start therapy and see the OCEAN! I love the ocean! Every time I see it I feel like crying! It is so beautiful! I hope we can take a walk on the beach in the morning! Well off I go to bed! Please keep praying for healing!
Friday, May 2, 2008
OK, so we are now leaving in slightly over 48 hours! I feel like there is so much to do! Getting ready for a trip like this is so overwhelming but so worth it! We spent the day doing therapy and running errands! We ordered Makenzie another pair of glasses. This pair will have transition lenses to protect her eyes from the sun. This will come in very handy in Florida! We had PT this morning and Makenzie did well. We also met a new speech therapist and she seemed very nice. We will see her again when we get back! Hopfully she has some good ideas for Makenzie's oral feeding.
In her 2nd PT of the day Makenzie did wonderful! Her head control is getting so good! She did a little bit of every activity and then we got out her gait trainer and she took a couple of steps all by herself! She has figured out how to push the walker forward and then her feet get stuck underneath her. It is so cute because she will go forward and get a huge smile on her face! She totally knows the walked moved and she knows that SHE did it! Thank You Jesus!
Yesterday, we spent a good part of the morning at Children's having Makenzie's Mic-Key button (feeding tube) put back in! I was taking her out of her walker and the tubing got caught on the arm rest and POP it was laying on the concrete instead of in her stomach! Oops!!!! She was such a trooper! We also had orthotics take a look at her AFO's and she has grown out of them! Go Makenzie! She has had these braces since Jan and already they are too small! So they casted her feet for new ones and they should be ready shortly after we get back!
Let my teaching fall like rain and my words descend like dew, like showers on new grass, like abundant rain on tender plants.
(Deuteronomy 32:2, NIV)
We thank you that you are a God who renews our strength by the power of your Holy Spirit. We ask that today you would renew Makenzie's strength, and that you would fall on her like rain and enable her to accomplish all she needs to today. Lord, we ask that any dry areas that are not prospering in Makenzie's life would be soaked with your refreshing rain. We also ask that you would refresh all those who work with Makenzie, that you would give them the creativity, knowledge, and insight to know how to best move her forward into all the plans you have. Thank you for all you continue to do in our lives.
In Jesus' Name,
Thank You Jesus for all of the blessings you have graced us with!
Please keep praying for our trip! Pray for safety and health! Thank you all for your thoughts and prayers!