Wednesday, October 1, 2008

Slow and Steady Wins the Race!

Life has been alright! We are almost back into the swing of things. Makenzie is doing well and is still tolerating her G-tube feeds. We are now up to 3 oz in her tummy and she is doing about the same orally. The eating thing is still slow but she is not gagging, chocking, or asperating so we will wait on the Lord and know that in his time it will come! She loves to lick Teddy Grahm's and pretzel's! It is so cute! She is still fairly loose and did a good job of sitting alone today. She is going to go back to school tomorrow for the first time since we have been back from AZ. I am sure she will be so happy!

We saw Kenzie's rehab doctor this week and she was very impressed with Makenzie's improvement. I love her doctor. We sat and talked for about a half an hour and she asked me why I had made the appointment. I gave her a confused look and then she said... "you already know all of this stuff... what do you need me for"..... She is so supportive!! Makenzie is still very tight in her arms and shoulders. I asked if we could do a test spinal Baclofen (muscle relaxer) to see what would happen if we totaly loosened her up. She said yes of course. The only problem with that is there is only on way to get that drug into the spine and that would require a pump to be surgicly placed in her stomach area. I am not going to do that. So if it was to work then what!? Then I will have a new issue!!! I would love to see my princess loose as a goose for a time though!!

Please continue to pray for Makenzie and our family. As time goes by and life changes it is hard to know which way to go! Pray for direction through God's leading! Life is such a roller coaster and with 4 kid's lives hanging in the balance it is hard to always know what is the right thing to do! We could not live this life with out all of your prayers and support! THANK YOU! Keep praying! Prayer Works!!!1


"“Patient endurance is what you need now, so you will continue to do God's will. Then you will receive all that he has promised.” (Hebrews 10:36, NLT)



Dear Lord,
We know that your Word tells us that you are faithful to complete the work you have begun. Thank you for the work that you are doing in each of us to draw us into a victorious and joyful life in you. We especially thank you for the work your are doing in Makenzie. There are times when we see progress, and times when progress seems very slow. It is easy to wonder when we will see a shift. We long for the day when certain milestones will be reached. But, Lord, you have a plan. Help us to understand what our part in your plan is and to do it faithfully, and help us to have the patience we need to leave the rest to you. And when we become frustrated or impatient with your timing, help us to remember that if we endure, we will receive all that you have promised. You are faithful and trustworthy, and we thank you that you have not forgotten us, but are at work on our behalf.
In Jesus’ Name,
Amen

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