Friday, July 11, 2008


Makenzie is 3!!! Last year we were in Pheonix for her birthday. Last year I let Makenzie taste a small lick of frosting as she had just started to be able to move food to the back of her mouth. This year she will get to eat cake! Modified a bit with some milk but none the less she can do it!!!!! Last year she was not smiling or laughing. This year she will be with all of her friends and family with a big smile on her face! Last year she could have cared less about toys and this year I went to pick out presents that I knew she would LOVE! She still won't be able to blow out her candles but she will look at them in wonder! Last year she wouldn't have even noticed the candles! I ordered her a Tinkerbell Cake because she loved the Peter Pan Ride at Disney World! I can't wait to see what she thinks of a big bunch of balloons! As much as I wish things were different I can't but be so thankful that I get to celebrate another year with my princess! Thank You Jesus! To God be ALL the Glory!

Makenzie has been doing great in therapy! She has continued to push herself up with her arms on her stomach ans is still doing well with sitting. We had a new OT start on Weds. She is great and I think she is going to be GREAT with Makenzie! We went to our feeding eval and I was very dissapointed, to say the least! They were very unhelpful and told me nothing that I didn't already know! Their grand conclusion was that Makenzie needs feeding therapy! Gezz really! So I went to her GI and we talked about her feeding schedule. We are going to cut 2 hous off of her feeds per day and he wants me to try and feed her 4 oz oraly. When we get to that new goal we will begin to add more oral and cut more tube feeds untill we can slowly widdle it down to her only eating through her mouth! Boy that will be a day for another party!!!! I am so greatful that we have such a wonderful GI doctor!

Well of to make formula and get to bed! Thanks for you thoughts and prayers!


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