Thursday, December 27, 2007

Merry Christmas


IMG_2942.jpg image by makenziesmiracle
Merry Christmas everyone! A day late but none the less Very Merry! We had a very busy Christmas holiday but it was great! Makenzie did wonderful with all of the many people and different places that we went. She spent three hours catching up on lost sleep today however! Her gut seems to be healing and has not thrown up in over a week! That is the best gift ever!!! She is doing well in therapy and we have started some new supplements that she seems to be responding well to also. Thank you so much for all of your support this holiday season. Please keep praying for Makenzie's restoration back to the beautiful little girl God blessed us with two years ago!
IMG_2945.jpg image by makenziesmiracle

Thursday, December 20, 2007

MMM.....Good

OT today was GREAT!!! Makenzie ENJOYED a Push Pop sucker! At first we couldn't decide if she even wanted anything to do with the sucker. She did! She was frustrated because she couldn't eat it fast enough. I held her in my arms and she opened her mouth time and time again! We put it on her lips first an then got it into her cheeks. Then the most wonderful thing happened.... She moved her tongue over to the side of her mouth to find the sucker!!! She found it on both sides!!!! We then moved it back to the front of her mouth and she closed her a few times around the sucker and attempted to suck on it once! This sounds like a very simple and easy task but what Makenzie did today we have been waiting to see for months. Her therapist was thrilled! It is nothing short of a MIRACLE!!! Thank You Jesus!!! She was also a happy little girl most of the day. Thanks for all of your thoughts and prayers! Keep praying for this continued gift of healing for Makenzie.

Tuesday, December 18, 2007

Quick Update

Makenzie is doing well! Christmas is quickly approching and the boys are getting very excited! Hopfully we will get some therapy next week but it will also be nice to have a little break. We went to Children's today to get fitted for new AFO's (braces to support her feet) and got a perfect mold. Hopefully they will fit her much better then the first pair that were made.


She was so happy yesterday and seems to be starting to giggle more often. she is also starting to reach out to me when I go to pick her up! She still has a long way to go in the arm department but the big improvement is that she is starting to get movement of her arms in the correct direction! Most of the time when she tries to reach out she ends up pulling her arms tighter into her body. She is starting to break out of that pattern. She is also starting to put weight on both of her hands and is pushing herself up through her shoulders! YEAH GOD!!!!


Monday, December 10, 2007

Reflux Away

I think I might get to go to bed early tonight but I wanted to quick get an update posted. Makenzie is doing great! I talked to a homeopathic doctor on Thursday and then went to a GI specialist and boy were their thoughts on totally different playing fields in regards to Makenzie's reflux! The GI doc wants to do an endoscopy. This would require putting her under and probing her digestive tract. NO GO, NO WAY! The other opinion is to take her off of the processed formula that is more or less refined sugar water and heal her gut. We choose this option! She has been on a homemade formula for about 3 days now and I would say that her reflux has improved by at least 75%!!! YEAH GOD! We will continue to try this and then at the end of the year the doctor wants to try some supplements that will focus more on her brain and the pathways from it to the rest of her body! Pray that this will make a difference and pray that God will give us the financial means to proceed! None of the biomedical treatment is covered by insurance but it has been more beneficial then pharmaceutical medicine! Makenzie is also doing very well in therapy and seems to be making many improvements every day! I have so much more to say but I need to call it a night. Thank You all for your prayers and support they have been such a wonderful blessing.

Monday, December 3, 2007

WOW


Makenzie is doing GREAT. She is getting so much personality. She has been so smiley and fun lately. I took her to Children's twice this week for therapy and they we're so amazed at her progress! We haven't been there for therapy in almost a month because of the holidays and Adams camp. She just seems so much more aware of everything and is starting to respond to questions with physical responses! We put the tree up and I stood in the hallway and said "Makenzie .... look at the Christmas tree" and with out any physical prompt she turned and looked right at it! She did the same at church today when I asked her to look at the kids that were lined up in the hallway getting ready to sing! Thank You soooo much to ALL of the kiddo's at Eastern Hills that have been praying for Makenzie! You are such a blessing to our family!

We also had a appointment this week with her rehab doctor, pediatrition,and some of her therapists this week at Children's to discuss Makenzie's care and progress. It went fine but I feel like I am chasing my tail on the feeding, calories, reflux, medication for reflux, and nissen surgery ordeal. Makenzie is still having big issues in the acid reflux department. She has been refuxing nearly every feeding and sometimes all day. It is probably very painful, can get into her lungs, and is keeping her from being able to take in enough food to gain as much weight as she needs to. The best treatment they can come up with is a surgery that would take part of the stomach and wrap it around the esophagus. This would let food go in through her mouth but not come back out. In theory it sounds wonderful but like with any surgery there are side effects. Please pray that God would make the right decision VERY clear to us so that we will have peace and Makenzie can be more comfy in her stomach without the constant spitting and puking with or without the surgery!

Thank You all for your prayers! It is late and I am scatterbrained ....Sorry! I have so much more to say but Kenzies feed it done and I can now go to bed! Thank You for loving my little girl so much and for all of the support! Keep praying!! It works!!

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