Today we have so much to be thankful for! Four beautiful children, a house to live in, and most importantly a loving God to give us HOPE for tomorrow! As for Makenzie, the thank you list is expansive. For starters she is alive! She doesn't have seizures. She is smiling, learning how to roll and sit, responding to her name, watching everything around her, gaining weight, moving her arms and legs purposefully, bearing weight into her arms, getting a protective response, losing tone,and protecting her airway are the big ones. Thank You, Thank You, Thank You God!
We also are so thankful for all of our friends, family, and church for being so supportive through the last nine months. Without all of you guys we wouldn't be where we are today! Thank you all so much for your prayers, donations of time, food, money and so much more! Thank You to all of the Doctors, nurses therapists, caseworkers, paramedics,and firemen who have taken such a wonderful interest in the healing of our beautiful little girl. THANK YOU ALL!!!!!
At the end of my list of blessings we have one request for prayer. Makenzie has been struggling on and off with Acid Reflux.Because of her tone she also has some motility issues in her bowels. In other words her stomach isn't emtying fast enough and then the reflux kicks in and she spits or throws up. There is medication for this but the side effects are not good. There is also surgery to prevent this but that would require anithsetic, heavy drugs , and recovery. Far from ideal! Please pray for healing in her little gut with out the need for surgery or drugs.
Please keep praying for Makenzie. She is healing very quickly but her journey to full recovery is far from over! Thank You all again for everything!
Thursday, November 22, 2007
Saturday, November 17, 2007
Adams Camp is now over. It was a great week! It was overwhelming for Makenzie the first few days because of all of the extra stimulation and new people. She did very well however the last two days and we met some very wonderful people this week. On Friday Makenzie SAT UP ALL BY HERSELF 2 times. It was so wondrful!!!! I posted the pictures of her sitting in the 2nd slde show on this site. She also seems to have gotten over her cold and is sleepng much better. She feels so much better and has been so smiley the last couple days. It is so nice to have a healthy girl again!!! Keep praying. God continues to be so faithful.
Sunday, November 11, 2007
Adam's Camp is here! Tomorrow I have to get up get myself ready, get 3 kids out the door for school, feed Makenzie, do her hair, get her dressed and be to camp by 9am. This will be interesting to say the least! This is a wonderful chance for Makenzie to get intensive therapy and still be close to home. It seems like all of the really great treatments have all been so far away. Thank You again to the Gart Family for providing us with this chance to go to Adam's Camp! Please pray that God uses this as a healing experience for Makenzie and that this may also help get her on a more normal sleep schedule. Thank You all for your continued prayer and for always believing that prayer works!
Saturday, November 10, 2007
Saturday, November 10, 2007
This has been a LONG week! All of my kids have a cold and Makenzie also has croup and a stomach bug. She has been so tired and cranky for the last few days. Keeping food down has been a challenge but she is doing better with that today. I am very tired too from lack of sleep and it has been hard to keep up with everything while holding my sick princess. Please pray that she gets rid of these bugs and is well by Monday for the start of Adams Camp.
Thursday, November 8, 2007
Makenzie has been eating food from a spoon for a few months now. She has done better at times than othesr but overall she can move her food from the front of her mouth to the back and swallow it. The big question is whether or not she is silently choking on this food. The big answer of the day is NO!!! We took her to Children's Hospital today for a swallow study. This is done in the radiology department. Makenzie sat in a chair while a x-ray machine took real time pictures of what was going on in her throat as I fed her different kinds of foods. She would only take a few bites but none of it went down the wrong tube. God is so good!!! Now with this report all of her therapists can help her learn how to eat and drink better and feel assured that is is safe for Makenzie. This is a huge deal because now we can push harder down the path to getting the g-tube removed someday!!! Oh and side note to all of that ..... she gained 2lbs!!!! Thank You all for your prayers and please keep praying for Makenzie. Please pray that she continues to gain weight and is more accepting of food in her mouth. She is doing so well keep praying!!!
Friday, November 2, 2007
We just wanted to give a huge Thank You to a small group at out church,,, Phase 5 and Supper Solutions for bringing our family a bunch of meals last week! Thank You so much for the gift of time we can now spend as a family without the stress of preparing dinner. It has been a huge blessing. Thank You also for the prayers lifted up for Makenzie while preparing these meals for our family. Thank You Thank You Thank You!!!!!!