Tuesday, October 30, 2007

Giggles

Today was a great day! I was playing with Makenzie in her highchair and moving her legs in a running motion. I was singing her a song about running and a huge smile came across her face and all of the sudden she started to GIGGLE!!!! It was the most amazing sight to see. She has been so smiley lately. She has been giving tons of social smiles. I never knew how much we all take for granted the simplest things in life. She is doing so well! Thank You all for your prayers and support. Please continue to pray for healing. God is listening and answering our many prayers.

Monday, October 22, 2007

Update


Makenzie is doing great. She had PT today and was doing wonderful with rolling. She is starting to put her hand above her head by herself while rolling over. This makes it easier to hold her head up and turn it. I will try to get some video of this in her slide show soon. She is also doing really well with putting weight on her arms.Regaining the use of her arms and hands is going to be a lot of work and a long process but she has already come so far and we know she can do it!!! We had an apointment at Children's today in the Special Care Clinic. They can help to cordinate Makenzie's medical care with all of her doctors and therapists. The catch is that for them to be most effective we will have to change her current pediatritian from Pediatric Pathways to the Clinic at Children's. I am not sure what we will do because we love all of her doctors and they are always available and I don't think this clinic will be as easy to access in a crisis. Please pray that we make the right choice for our daughter. Thank You all so much for your support and concern. We feel so blessed.

Tuesday, October 16, 2007

Cold season is here!

Makenzie is doing well. She just got over a cold! She has been doing great in therapy and is also still doing well with the G-tube feeds! With her being sick we haven't been doing much orally. Too many buggers. Not to much else to report. Life is busy! Next week it should slow down a bit! Yeah! Please keep praying for Makenzie! She continues to grow and heal and we are so proud of her! Pray, Pray, Pray, Pray!!! Thank You!

Chest X-Ray


Makenzie and I took a field trip today to the radiology department at Children's Hospital. Both the pediatrician and the rehab doctor thought it would be a good idea to rule out pneumonia with a chest x-ray. We got the report back this afternoon and it read CLEAR!!! Nothing in her lungs not only means that she doesn't have pneumonia but that the food she has been eating orally is going into her stomach and not her lungs! She is protecting her airway!!!!!! We have a swallow study on Nov. 8th so we will be able to see exactly what is going on but from this x-ray it looks wonderful. THANK YOU JESUS!!!! Keep on praying for continued healing!

Monday, October 15, 2007

Update

Makenzie is doing well. She has however been running a 100.5-102.8F fever on and off for the last three days. I took her to the pediatrician today and her blood work was normal, her lungs sounded good, no strep or flu, so I guess we just sit and wait. Her rehab doctor said to give it a couple days and if she is still running a fever she wants to do a chest x-ray to rule out pneumonia. Please pray that what ever is going on inside Makenzie's body heals so she can get back to her happy little self!
Please also pray for sleep! Makenzie has been waking up in the middle on the night and won't go back to sleep for hours. I am exhausted and need to get at least one WHOLE nights sleep soon. Well off to bed I go, maybe tonight will be that night!

Friday, October 12, 2007

Adam's Camp Scholarship


We want to thank Mrs. Sally Gart and The Jerry Gart Family Foundation for giving Makenzie a very generous scholarship so that she will be able to attend Adam's Camp in November. This camp will be a wonderful healing experience for Makenzie through 5 days of specialized intensive therapy. Below is some additional information on Adam's Camp. Once again THANK YOU Mrs. Gart for giving our daughter this amazing opportunity!!!!


Adam's Camp Mission
The mission of Adam's Camp is to maximize the strengths and potential of children and young adults with special needs by bringing together dedicated families with outstanding professionals and volunteers to provide specialized intensive therapy programs, family support and recreational camps.

Program highlights include:

¶ Half-day program for 5 consecutive days. Three hours of therapy daily based on individualized treatment plan. Parents participate throughout.

¶ Each child gets some combination of one-on-one OT, PT, speech and music therapy daily.

¶ Transdisciplinary goal-centered treatment. Professional team includes 4 pediatric therapists and 2 volunteers who work exclusively with 4 children throughout the week.

¶ Parent conference at end of week includes picture report and written follow-up recommendations for home, school, year-round therapists, pediatricians and other providers.

Thursday, October 11, 2007

Makenzie had a rehab appointment on Monday at Children's Hospital. It was a GREAT appointment. The doctor took Makenzie off all of her pharmacy drugs! No more nasty side effects! Praise God! Her doctor was also very impressed with her overall improvment! She was most impressed with the fact that her agitation was gone. She said that was HUGE! She is also very supportive of the hyperbaric chamber and supplements. I can't wait to get her back in the chamber. We are still raising money to buy our own so that we don't have to leave CO and all of our family ,friends, and therapists. Feeding is really the olny source of concern right now. Makenzie is 18lbs and has been for 6 months now. The doctor wants to run some blood tests to find out if there is any medical reason she is not gaining weight. We started calorie loading her food and hopfully that will help. Makenzie is making WONDERFUL progress! God has blessed in ways we never thought possible. Keep praying for Makenzie as her road to healing is still long. Pray that she gains some weight and has more energy to heal. Thank You all for your love and support.

Sunday, October 7, 2007

Garage Sale Fundraiser..... HUGE sucess


Thank You to everyone that helped out with the garage sale. We had so many generous people run the sale, bring things to sell, come to shop, and send donations. We raised over $1,100 dollars for Makenzie's Medical fund from the garage sale items alone! THANK YOU ALL!!!!!

Tuesday, October 2, 2007

The Makenzie Fund

To help raise funds to purchase a Hyperbaric Chamber and to pay for therapies and supplements please send a donation of any size to
Eastern Hills Community Church
19697 E Smokey Hill Rd.
Centennial, CO 80015
Attn: Steve
Thank you so much for all of the love and support you are all extending to our family!

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